pillsfuturicity
Living With CFSurveyTreatments

Survey Shows A Lot of People Save Leftover Painkillers

More than half of patients who get a prescription for opioid painkillers have leftover pills and keep them to use later, a practice that could potentially exacerbate the United States’ epidemic of painkiller addiction and overdoses. Researchers reporting in JAMA Internal Medicine also found that nearly half of those surveyed …

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mediq
AdheranceLiving With CFSupportTechnology

Med-IQ: Creating a Partnership for Adherence in Cystic Fibrosis treatment

We were recently contacted by Med-IQ, a company that educates CF medical professionals and patients and caregivers. We looked at their resources and felt the community here at cysticfibrosis.com might be interested in learning more from them. Med-IQ’s mission is “To deliver education that brings measurable change in healthcare professional …

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CRopDNA
Clinical TrialsGeneticsLiving With CF

CRISPR Finds Mutated DNA and Is Okayed for Clinical Trial

Since 2003, when we first started saving all our messages here at CysticFibrosis.com, Cystic Fibrosis genetics and our mutations have always been a hot topic. At first, we didn’t even know our genetics could be tested, because the sweat test was the gold standard for diagnosis. Then came Ambry Genetics. …

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Survey teens
Living With CFSurveyTeens

Survey Filled – Thank you!

Dear CF Community Members, This survey is FILLED. Thank you for your interest and/or participation. Please email [email protected] if you would like to be considered for future projects. Thank You!   As a valued member of the cystic fibrosis community, we are inviting teens to make their voices heard in …

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vendanta
Gastrointestinal DiseaseLiving With CFTreatments

Bugs into Drugs: Beyond Fecal Transplants

Read about the drug company: Vedanta “Vedanta is a little different. It focuses on isolating specific bacterial strains that scientists believe can have a specific biological effect, and making those into “rationally defined” drugs. That’s different than a fecal transplant, in which physicians take feces loaded with incredibly diverse bacteria …

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gold_cage_1600-1400x400
GeneticsLiving With CFTreatments

DNA ‘cages’ deliver drugs with zap of light

Very interesting article relating to drug delivery via ‘dna cages’. Getting drugs to go just where you want them inside the human body is no easy task, and using high doses of chemicals that are carried by the bloodstream to the wrong tissues or organs can lead to toxic side …

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clinicaltrialsapp
Clinical TrialsLiving With CFTechnology

Matching Volunteers to Clinical Trials by App

  It takes on average 17 years for clinical breakthroughs in the laboratory to reach patients. A big part of the delay is finding enough patients to take part in clinical trials. Only 5 to 10 percent of eligible adults enroll—and of those who show initial interest, only 5 percent …

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firstword
Living With CFResearchTechnology

Cystic Fibrosis Patients and Caregivers Becoming Experts in the Digital Arena

The April issue of FirstWord, an online journal for pharmaceutical professionals, features an article highlighting our Cystic Fibrosis community here at CysticFibrosis.com, “New KOL Engagement: Building Relationships with the Digital KOL Generation.” One of the main ideas of the article is that expert patients and caregivers, Key Opinion Leaders or …

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otoscope
Living With CFResearchTechnology

New low budget otoscope for early warning of hearing loss

There are all manner of reasons why someone may be more prone to hearing loss. They include genetic factors, birth complications, ear infections, a reaction to drugs, aging and environmental factors. Cystic Fibrosis treatment often include high doses of medications that may increase the risk of hearing loss. We are …

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AllanAnalytics
Living With CFSupport

Looking for a career choice? What to study?

This is something new that may interest some of you creative entrepreneurs… Just in from Kent State in Ohio and I wonder how many other states and universities will be offering courses based on future inventions using the latest materials found in technology! A problem could be “Safety” in handling …

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