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FAQsLiving With CFTransplants

Organ Donation – Surprising Facts

Last week, New York State changed the legal age of consent for organ donation from 18 to 16 years old. This shift is expected to improve New York’s number of donors significantly. “…only 24 percent of New Yorkers ages 18 and up have enrolled in the NYS Donate Life Registry …

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Contestsfeatured_memberLiving With CFNutrition

First Winner! Probiotic/Prebiotic Recipe Contest

This recipe and picture were submitted by cysticfibrosis.com member haimapatel. She is the first winner of the Probiotic/Prebiotic Recipe Contest and will receive a $50 Amazon gift card. The recipe looks easy to follow and delicious! Please give it a try. You can thank her and ask her questions in …

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Clinical TrialsLiving With CFResearchTechnology

Drug Development Pipeline for Cystic Fibrosis treatment

The CFF has a interesting and easy to use Drug Development Pipeline webpage which shows the stages of medication that is being developed for Cystic Fibrosis treatment. The stage of development of each medication is clearly indicated and the medications are divided into categories of therapeutic approach. The categories are: Restore CFTR …

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Living With CFNews & EventsResearchRespiratory Disease

Barnyard Dust and Preventing Asthma in Children (one of many Cystic Fibrosis symptoms)

People with cystic fibrosis have infection and inflammation in their lungs, and some also have problems with asthma, making asthma one of the many cystic fibrosis symptoms that patients experience. From the CDC: the prevalence of asthma in the general population of the U.S. is 7-9%, and as many as …

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Living With CFResearchRespiratory DiseaseTreatments

New Antibiotic Discovered in our Noses

Why do some people carry Staphylococcus aureus bacteria in their noses and others don’t? Scientists at the University of Tübingen in Germany asked this question, and they found that people without Staphylococcus Aureus (about 70% of the population) have a different bacteria — Staphylococcus lugdunensis — in their noses that kills …

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recipe contest
ContestsLiving With CFNutrition

Recipe Contest! Win a $50 Gift Card

Enter your recipe related to Prebiotics and/or Probiotics to win a $50.00 Amazon gift card. Please submit a photo or video of the dish and a written description of the ingredients and how to make it. We’ll give gift cards to the 5 best recipes that contain probiotic or prebiotic …

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Probiotics and Prebiotics
FAQsGastrointestinal DiseaseLiving With CFNutritionResearch

Probiotics and Prebiotics in Food

PROBIOTICS yogurt kefir milk buttermilk soy/nut milks fermented soft cheeses (also gouda, cheddar, swiss, parmesan) kombucha tea sauerkraut (unpasteurized) kimchi miso soup tempeh sourdough bread olives sour pickles (not pickles made in vinegar) PREBIOTICS leeks asparagus chicory Jerusalem artichokes kale (and other dark leafy greens) garlic onions whole grains (barley, …

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Gastrointestinal DiseaseLiving With CFNutritionResearch

Intestinal Bacteria in Research Articles

Earlier this month, the article by LittleLab4CF, Fecal Microbial Transplants and the book “Gut” discussed the importance of having and feeding the right bacteria in our GI tracts. Our gut bacteria influences our immune systems, the comfort/pain level we have when digesting foods, and our ability to extract nutrients from …

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ATS article global warming
Living With CFResearchRespiratory Disease

Climate Change and Respiratory Infections

A recent article in the journal of the American Thoracic Society looks at how climate change is influencing respiratory infections. The authors describe studies that have shown a connection between weather events and shifting respiratory disease levels in the general populations, but more significantly in children and the elderly. The …

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Gut
Book Reviewsfeatured_memberGastrointestinal DiseaseLiving With CFNutrition

Fecal Microbial Transplants and “Gut” by Guilia Enders

Over the years, CysticFibrosis.com member and moderator LittleLab4CF has helped many people with GI problems in the forums and through private messages. His insight and advice come from years of personal experience with GI disease and from being a scientist. Below are some of his thoughts on Fecal Microbiota Transplants …

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