AdheranceLiving With CFResearchTechnology

Bluetooth-enabled tech shows promise for adherence in Cystic Fibrosis treatment

A device that monitors inhaled antibiotic use in Cystic Fibrosis treatment, and transmits the information to doctors via Bluetooth technology resulted in improved adherence and lung function in a pilot study from Ventura County Medical Center in Ventura, California. Reported in a press release from the journal Chest this month: …

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AdheranceLiving With CFSupportTechnology

Med-IQ: Creating a Partnership for Adherence in Cystic Fibrosis treatment

We were recently contacted by Med-IQ, a company that educates CF medical professionals and patients and caregivers. We looked at their resources and felt the community here at cysticfibrosis.com might be interested in learning more from them. Med-IQ’s mission is “To deliver education that brings measurable change in healthcare professional …

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AdheranceLiving With CFParentingSupport

Parenting Children with Health Issues: From our Archives

This video was one of five presented on CysticFibrosis.com by Lisa Greene. Lisa is the mother of two children with CF. She is an excellent model of motherhood. Happy Mother’s Day! Salt and Light, Imogene

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AdheranceLiving With CFResearch

Dr. Warren Warwick, The Bell Curve

The Bell Curve Dr. Warwick has made a study of what it takes to do better than everyone else.  He will be missed by the CF Community! What happens when patients find out how good their doctors really are? BY ATUL GAWANDE Every illness is a story, and Annie Page’s …

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AdheranceFAQsLiving With CF

YOUR DATA! Your Questions on Self Management

Here are your questions on Self Management from our Survey last Spring What paperwork should I keep or throw away? More up to date convenient equipment Easiest ways to clean a nebulizer? How can I learn more about the various nebulizer on the market, and which are best? How much …

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AdheranceLiving With CFParentingSupport

Parenting Tips

Lisa Greene is a writer, educator and mother of two children with CF. She and child psychiatrist Dr. Foster Cline wrote a book about parenting children with health issues. The book can be found here, and this is her website www.TipsForCFParents.com Below is an article about five crucial concepts that …

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AdheranceLiving With CF

Ten Hurdles to Cystic Fibrosis Patient Adherence

By Jeanne Barnett on Jun 4, 2012 (source: EyeforPharma Blog) There are many factors which can influence the level of patient adherence in any given treatment, Jeanne Barnett looks at how social platforms can provide the answers and presents her findings. You may already be aware of the great success …

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AdheranceExerciseLiving With CFTechnology

CF Innovators: Blown Away

An app aimed at helping younger people with cystic fibrosis stick to their exercise regime, and a cuddly bear to help children take control of their self-management were joint winners in a 24-hour Inclusive Design Challenge on Monday, which marked the launch of Sheffield Hallam University’s Design4Health conference. The challenge …

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