bubby's enzymes

Toddler Bubby, taking enzymes for Cystic Fibrosis treatment

80%-90% of people with Cystic Fibrosis need to take enzyme capsules before they eat, as part of their Cystic Fibrosis treatment. In Cystic Fibrosis, as the lungs produce thick, sticky mucus, the pancreas also makes the same type of mucus that blocks the release of enzymes needed for digestion. When …

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sharktank image

Sharktank: Jim Caldwell

My name is Jim Caldwell and I would like to introduce myself to this group. I am the president of another cystic fibrosis group called Sharktank Research Foundation (sharktank.org). I’ve been involved with Sharktank since 1999. I began studying cystic fibrosis seventeen years ago through Sharktank, shortly after my daughter was …

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nutraceuticals

Your Questions on Nutraceuticals

From our Survey in 2015 Qualitative Research: YOUR Questions   What are some natural treatments that are safe and effective to enhance regular treatments? Who will work with CF patients regarding natural remedies such as essential oils? What foods, natural remedies, or supplements have most helped patients slow the progression …

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adayinthelife

How cystic fibrosis promotes lung infections

From the NIH At a Glance Scientists discovered how cystic fibrosis raises the risk for lung infections. The findings also identify a novel potential therapeutic target. Cystic fibrosis is an inherited disorder that results in a buildup of thick and sticky mucus in the lungs, airways, and other organs. Excess …

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Hypertonic Saline

Cystic Fibrosis treatment: Hypertonic Saline Questions

These question were posed by CysticFibrosis.com and answered by: Michael McPeck, RRT Respiratory Therapist   What is hypertonic saline (HTS)? HTS is sterile water into which common salt (sodium chloride, NaCl) has been dissolved.  The degree of salinity, or salt concentration must be greater than 0.9% in order to be …

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Self Management Tree

YOUR DATA! Your Questions on Self Management

Here are your questions on Self Management from our Survey last Spring What paperwork should I keep or throw away? More up to date convenient equipment Easiest ways to clean a nebulizer? How can I learn more about the various nebulizer on the market, and which are best? How much …

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Lancet logo

Trial results of Ivacaftor in Cystic Fibrosis children ages 2-5

Results are out from a two part study involving children ages 2-5 with at least one gating mutation trying Ivacaftor (a medication used in Cystic Fibrosis treatment) From the Lancet Respiratory Journal, 20 January 2016 Ivacaftor has been shown to be a safe, effective treatment for cystic fibrosis in patients …

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crispr

Genome editing with CRISPR-Cas9

This video explains how research in genome editing may help treat genetic diseases like CF in the future.

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