cff drug development 2
Clinical TrialsLiving With CFResearchTechnology

Drug Development Pipeline for Cystic Fibrosis treatment

The CFF has a interesting and easy to use Drug Development Pipeline webpage which shows the stages of medication that is being developed for Cystic Fibrosis treatment. The stage of development of each medication is clearly indicated and the medications are divided into categories of therapeutic approach. The categories are: Restore CFTR …

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clinicaltrialsapp
Clinical TrialsLiving With CFTechnology

Matching Volunteers to Clinical Trials by App

  It takes on average 17 years for clinical breakthroughs in the laboratory to reach patients. A big part of the delay is finding enough patients to take part in clinical trials. Only 5 to 10 percent of eligible adults enroll—and of those who show initial interest, only 5 percent …

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firstword
Living With CFResearchTechnology

Patients and Caregivers Becoming Experts in the Digital Arena

The April issue of FirstWord, an online journal for pharmaceutical professionals, features an article highlighting our community here at CysticFibrosis.com, “New KOL Engagement: Building Relationships with the Digital KOL Generation.” One of the main ideas of the article is that expert patients and caregivers, Key Opinion Leaders or KOLs, should …

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otoscope
Living With CFResearchTechnology

Early Warning for Hearing Loss

With the help of a 3D printer and just $6.42 in parts, anybody can turn a smartphone into a low budget otoscope and take photos of the inner ear that can uncover problems in the making. Robert Hunt and Tessa Bronez, who both graduated with degrees in Biomedical Engineering this …

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spirocall
Living With CFRespiratory DiseaseTechnology

SpiroCall: Lung Function Measured by Phone

Computer scientists and engineers at the University of Washington have developing SpiroCall, a tool that can measure lung function through a phone – any phone – including smartphones, flip-phones, landlines or payphones. From the article in Scientific News Today: A paper to be presented in May at the Association for …

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lungs
Living With CFRespiratory DiseaseTechnology

Better Lung Scanning Technology

New scanning technology which will give a much clearer picture of lung disease has taken a major step forward thanks to scientists at The University of Nottingham. The experts at the Sir Peter Mansfield Imaging Centre have developed a process using specially treated krypton gas as an inhalable contrast agent …

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xbox kinect
Living With CFRespiratory DiseaseTechnology

Xbox Kinect to Monitor Lung Function

Researchers in the UK are developing technology for enhanced spirometry with 3-D imaging using four Microsoft Xbox Kinect devices. This technology assesses lung function and chest wall movement, and might also be useful in testing medication efficacy and changes in respiration during exercise. From the article in Forbes magazine: In …

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3-d ears
Living With CFTechnologyTransplants

3D Printed Ear, Bone, and Muscle Tissue

It sounds like science fiction, but it’s not: 3D-printed human ear, bone, and muscle tissue have been implanted in lab rats and successfully grew their own blood vessel networks. We’ve been hearing about this for a few years now: different groups of researchers working on 3D-printing processes and materials that …

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3dlivermedium
Living With CFNews & EventsTechnologyTransplants

UCSD’s 3D Printed Liver Cells Most Liver-like Yet

3 D Printed Liver Image from ccsmobile.co.uk Feb 9, 2016 Home to the original bioprinting firm, Organovo, San Diego is, apparently, a hotbed of bioprinting activity.  Or, at the very least, the University of California, San Diego is make its own strides in the field of bioprinted liver tissue.  Published …

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Living With CFResearchTechnology

Personal Spirometry and the Cystic Fibrosis Patient

Written by Jeanne Barnett As a moderator/founder of a vibrant online social health community: cysticfibrosis.com, I can attest to hundreds of messages in which e-patients discuss their PFTs (pulmonary function tests). Members are so in tune with these numbers, they often add them to their signatures along with their genetic …

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