mediq
AdheranceLiving With CFSupportTechnology

Med-IQ: Creating a Partnership for Adherence in Cystic Fibrosis treatment

We were recently contacted by Med-IQ, a company that educates CF medical professionals and patients and caregivers. We looked at their resources and felt the community here at cysticfibrosis.com might be interested in learning more from them. Med-IQ’s mission is “To deliver education that brings measurable change in healthcare professional …

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2016-08-31 18.55.51
Living With CFRespiratory DiseaseTechnology

A New Tool for Cystic Fibrosis Lung Monitoring

Ultrashort Echo-Time MRI has been shown in a recent study, published last week in the Annals of the American Thoracic Society, to be comparable to computerized tomography (CT scanning) in measuring CF lung disease. This is excellent news as it offers a tool that is precise and detailed like CT, …

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cff drug development 2
Clinical TrialsLiving With CFResearchTechnology

Drug Development Pipeline for Cystic Fibrosis treatment

The CFF has a interesting and easy to use Drug Development Pipeline webpage which shows the stages of medication that is being developed for Cystic Fibrosis treatment. The stage of development of each medication is clearly indicated and the medications are divided into categories of therapeutic approach. The categories are: Restore CFTR …

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clinicaltrialsapp
Clinical TrialsLiving With CFTechnology

Matching Volunteers to Clinical Trials by App

  It takes on average 17 years for clinical breakthroughs in the laboratory to reach patients. A big part of the delay is finding enough patients to take part in clinical trials. Only 5 to 10 percent of eligible adults enroll—and of those who show initial interest, only 5 percent …

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firstword
Living With CFResearchTechnology

Cystic Fibrosis Patients and Caregivers Becoming Experts in the Digital Arena

The April issue of FirstWord, an online journal for pharmaceutical professionals, features an article highlighting our Cystic Fibrosis community here at CysticFibrosis.com, “New KOL Engagement: Building Relationships with the Digital KOL Generation.” One of the main ideas of the article is that expert patients and caregivers, Key Opinion Leaders or …

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otoscope
Living With CFResearchTechnology

New low budget otoscope for early warning of hearing loss

There are all manner of reasons why someone may be more prone to hearing loss. They include genetic factors, birth complications, ear infections, a reaction to drugs, aging and environmental factors. Cystic Fibrosis treatment often include high doses of medications that may increase the risk of hearing loss. We are …

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spirocall
Living With CFRespiratory DiseaseTechnology

SpiroCall: Lung Function Measured by Phone

Regular measurement in lung function changes through spirometry testing, is a vital part of monitoring cystic fibrosis symptoms. As this is test requires special equipment, a tool that can perform this test through a phone could bring spirometry to more patients. Computer scientists and engineers at the University of Washington …

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lungs
Living With CFRespiratory DiseaseTechnology

Better Lung Scanning Technology

New scanning technology which will give a much clearer picture of lung disease has taken a major step forward thanks to scientists at The University of Nottingham. The experts at the Sir Peter Mansfield Imaging Centre have developed a process using specially treated krypton gas as an inhalable contrast agent …

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xbox kinect
Living With CFRespiratory DiseaseTechnology

Xbox Kinect to Monitor Lung Function

Researchers in the UK are developing technology for enhanced spirometry with 3-D imaging using four Microsoft Xbox Kinect devices. This technology assesses lung function and chest wall movement, and might also be useful in testing medication efficacy and changes in respiration during exercise. From the article in Forbes magazine: In …

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3-d ears
Living With CFTechnologyTransplants

3D Printed Ear, Bone, and Muscle Tissue

It sounds like science fiction, but it’s not: 3D-printed human ear, bone, and muscle tissue have been implanted in lab rats and successfully grew their own blood vessel networks. We’ve been hearing about this for a few years now: different groups of researchers working on 3D-printing processes and materials that …

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