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FinancialLiving With CFSupportTransplantsTreatments

Miracle Flights: free medically-related air travel for ill patients, including for Cystic Fibrosis treatment

Struggling to cover the cost of air travel to receive your medical care? Miracle Flights assists patients through free commercial air travel to obtain special medical care. Read more about this fantastic organization and how to apply below…   Blog article written in conjunction with Brooke Freeman, Community Outreach Officer …

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Living With CFTechnologyTransplants

Lung Bio-engineering Clinical Trial may benefit cystic fibrosis patients

EX VIVO LUNG PERFUSION During an organ transplant, time is of the essence and Ex Vivo Lung Perfusion is no different. Lungs are explanted, evaluated, and shipped as quickly as possible to our specialized EVLP facility. The EVLP team works around the clock to assess the lungs, share data with …

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Living With CFTransplants

The Bible for Transplants: make data driven decisions about lung transplant

The Scientific Registry of Transplant Recipients (SRTR) helps patients make data driven decisions about their transplant, such as lung transplants in Cystic Fibrosis. Lots of great information in The Scientific Registry of Transplant Recipients (SRTR) The registry supports ongoing evaluation of the status of solid organ transplantation in the United …

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FAQsLiving With CFTransplants

Organ Donation – Surprising Facts

Cystic Fibrosis patients make up 12 percent of the waiting list for lungs. New York State changed the legal age of consent for organ donation from 18 to 16 years old to improve number of donors. Read more below: Last week, New York State changed the legal age of consent …

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FAQsLiving With CFTransplantsTreatments

Cystic Fibrosis treatment: lung transplant facts and member experiences

Lung transplantation is something a person with Cystic Fibrosis might consider late in the progression of the disease, when life expectancy is about 1-2 more years and quality of life is severely compromised. It is a last resort in terms of Cystic Fibrosis treatment, but can be a life-saving procedure. …

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Cystic Sisters
Living With CFParentingTransplantsVideo

Documentary: Sisters living with Cystic Fibrosis

Olivia Shivas from Attitude Pictures in New Zealand wrote to cysticfibrosis.com about a documentary series her organization has created that explores the lives of people living with serious health conditions and disabilities. One of their documentaries is about two sisters, Kristie and Nikki, who are young moms with cystic fibrosis. …

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Living With CFTechnologyTransplants

3D Printed Ear, Bone, and Muscle Tissue

It sounds like science fiction, but it’s not: 3D-printed human ear, bone, and muscle tissue have been implanted in lab rats and successfully grew their own blood vessel networks. We’ve been hearing about this for a few years now: different groups of researchers working on 3D-printing processes and materials that …

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Living With CFNews & EventsTechnologyTransplants

UCSD’s 3D Printed Liver Cells Most Liver-like Yet

3 D Printed Liver Image from ccsmobile.co.uk Feb 9, 2016 Home to the original bioprinting firm, Organovo, San Diego is, apparently, a hotbed of bioprinting activity.  Or, at the very least, the University of California, San Diego is make its own strides in the field of bioprinted liver tissue.  Published …

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