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Miracle Flights: free medically-related air travel for ill patients, including for Cystic Fibrosis treatment

Struggling to cover the cost of air travel to receive your medical care? Miracle Flights assists patients through free commercial air travel to obtain special medical care. Read more about this fantastic organization and how to apply below…   Blog article written in conjunction with Brooke Freeman, Community Outreach Officer …

Living With CFTechnologyTransplants

Lung Bio-engineering Toronto to Maryland

EX VIVO LUNG PERFUSION During an organ transplant, time is of the essence and Ex Vivo Lung Perfusion is no different. Lungs are explanted, evaluated, and shipped as quickly as possible to our specialized EVLP facility. The EVLP team works around the clock to assess the lungs, share data with …

Living With CFTransplants

The Bible for Transplants

Lots of great information in The Scientific Registry of Transplant Recipients (SRTR) The registry supports ongoing evaluation of the status of solid organ transplantation in the United States. It is administered by the Chronic Disease Research Group of the Minneapolis Medical Research Foundation. SRTR responsibilities include designing and carrying out …

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Organ Donation – Surprising Facts

Last week, New York State changed the legal age of consent for organ donation from 18 to 16 years old. This shift is expected to improve New York’s number of donors significantly. “…only 24 percent of New Yorkers ages 18 and up have enrolled in the NYS Donate Life Registry …

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Lung Transplant Facts

Lung transplantation is something a person with CF might consider late in the progression of the disease, when life expectancy is about 1-2 more years and quality of life is severely compromised. Here are some numerical facts about lung transplants. The number of reported lung transplant surgeries worldwide has more …

Cystic Sisters
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Documentary: My Perfect Family, Cystic Sisters

Olivia Shivas from Attitude Pictures in New Zealand wrote to cysticfibrosis.com about a documentary series her organization has created that explores the lives of people living with serious health conditions and disabilities. One of their documentaries is about two sisters, Kristie and Nikki, who are young moms with cystic fibrosis. …

3-d ears
Living With CFTechnologyTransplants

3D Printed Ear, Bone, and Muscle Tissue

It sounds like science fiction, but it’s not: 3D-printed human ear, bone, and muscle tissue have been implanted in lab rats and successfully grew their own blood vessel networks. We’ve been hearing about this for a few years now: different groups of researchers working on 3D-printing processes and materials that …

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UCSD’s 3D Printed Liver Cells Most Liver-like Yet

3 D Printed Liver Image from ccsmobile.co.uk Feb 9, 2016 Home to the original bioprinting firm, Organovo, San Diego is, apparently, a hotbed of bioprinting activity.  Or, at the very least, the University of California, San Diego is make its own strides in the field of bioprinted liver tissue.  Published …