• Profile photo of jaybirdjaybird
    Member
    #171204898161

    Emily’s report has only reported ‘normal flora only’ once. All of her other reports have been positive for staph a in addition to normal flora. We therefore assumed the 1 time it came back ‘normal’ she still had the staph, but just didn’t produce a sample that happened to contain any.

    We don’t routinely treat the staph (only when she’s sick), but do not consider the staph to be normal flora either, since it is infection-causing. Normal flora is only considered ‘normal’ because it’s something that is supposed to be there and isn’t anything that would make you sick, I’d think?

    I would assume, if you have cultures that don’t grow normal flora, it would be for the same reason you don’t always grow the nasty bugs but may be assumed to chronically be colonized with them even if an occasional report doesn’t show them; you don’t always cough enough of it up to grow out.

    I agree with Melissa’s post on causes for symptoms that are not necessarily related to bacterial infection, btw. Allergies (of various sorts) and inflammation/asthma can make you VERY sick but respond well to various non-abx treatments… going untreated due to those causes also sets up an environment perfect for harboring future infection, setting up a vicious cycle. And sputum cultures can be quite spotty in what they catch> you can be harboring stuff pretty deep in your lungs that you aren’t coughing up; doctors being concerned about growing something they can’t identify is a common reason for doing a bronch.

    Profile photo of jaybirdjaybird
    Member
    #171205031373

    Emily’s report has only reported ‘normal flora only’ once. All of her other reports have been positive for staph a in addition to normal flora. We therefore assumed the 1 time it came back ‘normal’ she still had the staph, but just didn’t produce a sample that happened to contain any.

    We don’t routinely treat the staph (only when she’s sick), but do not consider the staph to be normal flora either, since it is infection-causing. Normal flora is only considered ‘normal’ because it’s something that is supposed to be there and isn’t anything that would make you sick, I’d think?

    I would assume, if you have cultures that don’t grow normal flora, it would be for the same reason you don’t always grow the nasty bugs but may be assumed to chronically be colonized with them even if an occasional report doesn’t show them; you don’t always cough enough of it up to grow out.

    I agree with Melissa’s post on causes for symptoms that are not necessarily related to bacterial infection, btw. Allergies (of various sorts) and inflammation/asthma can make you VERY sick but respond well to various non-abx treatments… going untreated due to those causes also sets up an environment perfect for harboring future infection, setting up a vicious cycle. And sputum cultures can be quite spotty in what they catch> you can be harboring stuff pretty deep in your lungs that you aren’t coughing up; doctors being concerned about growing something they can’t identify is a common reason for doing a bronch.

    Profile photo of jaybirdjaybird
    Member
    #171205128140

    Emily’s report has only reported ‘normal flora only’ once. All of her other reports have been positive for staph a in addition to normal flora. We therefore assumed the 1 time it came back ‘normal’ she still had the staph, but just didn’t produce a sample that happened to contain any.

    We don’t routinely treat the staph (only when she’s sick), but do not consider the staph to be normal flora either, since it is infection-causing. Normal flora is only considered ‘normal’ because it’s something that is supposed to be there and isn’t anything that would make you sick, I’d think?

    I would assume, if you have cultures that don’t grow normal flora, it would be for the same reason you don’t always grow the nasty bugs but may be assumed to chronically be colonized with them even if an occasional report doesn’t show them; you don’t always cough enough of it up to grow out.

    I agree with Melissa’s post on causes for symptoms that are not necessarily related to bacterial infection, btw. Allergies (of various sorts) and inflammation/asthma can make you VERY sick but respond well to various non-abx treatments… going untreated due to those causes also sets up an environment perfect for harboring future infection, setting up a vicious cycle. And sputum cultures can be quite spotty in what they catch> you can be harboring stuff pretty deep in your lungs that you aren’t coughing up; doctors being concerned about growing something they can’t identify is a common reason for doing a bronch.

    Profile photo of jaybirdjaybird
    Member
    #171205264247

    Emily’s report has only reported ‘normal flora only’ once. All of her other reports have been positive for staph a in addition to normal flora. We therefore assumed the 1 time it came back ‘normal’ she still had the staph, but just didn’t produce a sample that happened to contain any.

    We don’t routinely treat the staph (only when she’s sick), but do not consider the staph to be normal flora either, since it is infection-causing. Normal flora is only considered ‘normal’ because it’s something that is supposed to be there and isn’t anything that would make you sick, I’d think?

    I would assume, if you have cultures that don’t grow normal flora, it would be for the same reason you don’t always grow the nasty bugs but may be assumed to chronically be colonized with them even if an occasional report doesn’t show them; you don’t always cough enough of it up to grow out.

    I agree with Melissa’s post on causes for symptoms that are not necessarily related to bacterial infection, btw. Allergies (of various sorts) and inflammation/asthma can make you VERY sick but respond well to various non-abx treatments… going untreated due to those causes also sets up an environment perfect for harboring future infection, setting up a vicious cycle. And sputum cultures can be quite spotty in what they catch> you can be harboring stuff pretty deep in your lungs that you aren’t coughing up; doctors being concerned about growing something they can’t identify is a common reason for doing a bronch.

    Profile photo of jaybirdjaybird
    Member
    #171205395553

    Emily’s report has only reported ‘normal flora only’ once. All of her other reports have been positive for staph a in addition to normal flora. We therefore assumed the 1 time it came back ‘normal’ she still had the staph, but just didn’t produce a sample that happened to contain any.

    We don’t routinely treat the staph (only when she’s sick), but do not consider the staph to be normal flora either, since it is infection-causing. Normal flora is only considered ‘normal’ because it’s something that is supposed to be there and isn’t anything that would make you sick, I’d think?

    I would assume, if you have cultures that don’t grow normal flora, it would be for the same reason you don’t always grow the nasty bugs but may be assumed to chronically be colonized with them even if an occasional report doesn’t show them; you don’t always cough enough of it up to grow out.

    I agree with Melissa’s post on causes for symptoms that are not necessarily related to bacterial infection, btw. Allergies (of various sorts) and inflammation/asthma can make you VERY sick but respond well to various non-abx treatments… going untreated due to those causes also sets up an environment perfect for harboring future infection, setting up a vicious cycle. And sputum cultures can be quite spotty in what they catch> you can be harboring stuff pretty deep in your lungs that you aren’t coughing up; doctors being concerned about growing something they can’t identify is a common reason for doing a bronch.

    Profile photo of charlielimacharlielima
    Member
    #171204898156

    I am a weird case because I often have all the symptoms of a bacterial infection (fever, consolidation on x-ray, increased cough, and green or bloody sputum) and my cultures, even the AFB ones that take five weeks, will come back NORMAL.

    In the past I took antibiotics right away. Now, I take them but not as until I get severe pain/pneumonia and blood in the sputum. You should ask your doctor about APBA (they can test your blood to see if you have a major reaction which might not show up in the sptum). And ask your doctor about trying oral steriods or other anti-inflammatories if you feel much worse but culture nothing.

    The theories that pulmos have come up with for me are
    1) autoimmune inflammation of the lungs–no tests have shown this for me though.
    2) anaerobic bacteria from stomach contents causing lung infections (anaerobic bacteria would not come out in a culture)–but just got back results which said absolutely no reflux for me.
    3) some bacteria that is just not getting into the cup or not growing in the dish for whatever reason.

    Here is a study on anerobic bacteria and people with CF:

    http://ajrccm.atsjournals.org/…ontent/short/177/9/995

    Profile photo of charlielimacharlielima
    Member
    #171205031369

    I am a weird case because I often have all the symptoms of a bacterial infection (fever, consolidation on x-ray, increased cough, and green or bloody sputum) and my cultures, even the AFB ones that take five weeks, will come back NORMAL.

    In the past I took antibiotics right away. Now, I take them but not as until I get severe pain/pneumonia and blood in the sputum. You should ask your doctor about APBA (they can test your blood to see if you have a major reaction which might not show up in the sptum). And ask your doctor about trying oral steriods or other anti-inflammatories if you feel much worse but culture nothing.

    The theories that pulmos have come up with for me are
    1) autoimmune inflammation of the lungs–no tests have shown this for me though.
    2) anaerobic bacteria from stomach contents causing lung infections (anaerobic bacteria would not come out in a culture)–but just got back results which said absolutely no reflux for me.
    3) some bacteria that is just not getting into the cup or not growing in the dish for whatever reason.

    Here is a study on anerobic bacteria and people with CF:

    http://ajrccm.atsjournals.org/…ontent/short/177/9/995

    Profile photo of charlielimacharlielima
    Member
    #171205128136

    I am a weird case because I often have all the symptoms of a bacterial infection (fever, consolidation on x-ray, increased cough, and green or bloody sputum) and my cultures, even the AFB ones that take five weeks, will come back NORMAL.

    In the past I took antibiotics right away. Now, I take them but not as until I get severe pain/pneumonia and blood in the sputum. You should ask your doctor about APBA (they can test your blood to see if you have a major reaction which might not show up in the sptum). And ask your doctor about trying oral steriods or other anti-inflammatories if you feel much worse but culture nothing.

    The theories that pulmos have come up with for me are
    1) autoimmune inflammation of the lungs–no tests have shown this for me though.
    2) anaerobic bacteria from stomach contents causing lung infections (anaerobic bacteria would not come out in a culture)–but just got back results which said absolutely no reflux for me.
    3) some bacteria that is just not getting into the cup or not growing in the dish for whatever reason.

    Here is a study on anerobic bacteria and people with CF:

    http://ajrccm.atsjournals.org/…ontent/short/177/9/995

    Profile photo of charlielimacharlielima
    Member
    #171205264243

    I am a weird case because I often have all the symptoms of a bacterial infection (fever, consolidation on x-ray, increased cough, and green or bloody sputum) and my cultures, even the AFB ones that take five weeks, will come back NORMAL.

    In the past I took antibiotics right away. Now, I take them but not as until I get severe pain/pneumonia and blood in the sputum. You should ask your doctor about APBA (they can test your blood to see if you have a major reaction which might not show up in the sptum). And ask your doctor about trying oral steriods or other anti-inflammatories if you feel much worse but culture nothing.

    The theories that pulmos have come up with for me are
    1) autoimmune inflammation of the lungs–no tests have shown this for me though.
    2) anaerobic bacteria from stomach contents causing lung infections (anaerobic bacteria would not come out in a culture)–but just got back results which said absolutely no reflux for me.
    3) some bacteria that is just not getting into the cup or not growing in the dish for whatever reason.

    Here is a study on anerobic bacteria and people with CF:

    http://ajrccm.atsjournals.org/…ontent/short/177/9/995

    Profile photo of charlielimacharlielima
    Member
    #171205395549

    I am a weird case because I often have all the symptoms of a bacterial infection (fever, consolidation on x-ray, increased cough, and green or bloody sputum) and my cultures, even the AFB ones that take five weeks, will come back NORMAL.

    In the past I took antibiotics right away. Now, I take them but not as until I get severe pain/pneumonia and blood in the sputum. You should ask your doctor about APBA (they can test your blood to see if you have a major reaction which might not show up in the sptum). And ask your doctor about trying oral steriods or other anti-inflammatories if you feel much worse but culture nothing.

    The theories that pulmos have come up with for me are

    1) autoimmune inflammation of the lungs–no tests have shown this for me though.

    2) anaerobic bacteria from stomach contents causing lung infections (anaerobic bacteria would not come out in a culture)–but just got back results which said absolutely no reflux for me.

    3) some bacteria that is just not getting into the cup or not growing in the dish for whatever reason.

    Here is a study on anerobic bacteria and people with CF:

    http://ajrccm.atsjournals.org/…ontent/short/177/9/995

    Profile photo of ClintrojanClintrojan
    Member
    #171204898115

    No. The report I get normally just states whether or not normal flora was also present. If that’s all my culture grows, it is considered normal.

    I have wondered, though, why sometimes it is present along with my other bacteria and sometimes not.

    Profile photo of ClintrojanClintrojan
    Member
    #171205031332

    No. The report I get normally just states whether or not normal flora was also present. If that’s all my culture grows, it is considered normal.

    I have wondered, though, why sometimes it is present along with my other bacteria and sometimes not.

    Profile photo of ClintrojanClintrojan
    Member
    #171205128099

    No. The report I get normally just states whether or not normal flora was also present. If that’s all my culture grows, it is considered normal.

    I have wondered, though, why sometimes it is present along with my other bacteria and sometimes not.

    Profile photo of ClintrojanClintrojan
    Member
    #171205264206

    No. The report I get normally just states whether or not normal flora was also present. If that’s all my culture grows, it is considered normal.

    I have wondered, though, why sometimes it is present along with my other bacteria and sometimes not.

    Profile photo of ClintrojanClintrojan
    Member
    #171205395512

    No. The report I get normally just states whether or not normal flora was also present. If that’s all my culture grows, it is considered normal.

    I have wondered, though, why sometimes it is present along with my other bacteria and sometimes not.

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