• Profile photo of scarecrowscarecrow
    Member
    #171205169814

    Iron is what holds the Oxygen in your blood. If you have any breathing problems then you need to have ALL the iron in your blood that you can get. When you get to low 20’s on your FEV’s, and I hope you don’t, you can feel the difference in a few days when you start getting extra iron.

    Profile photo of scarecrowscarecrow
    Member
    #171205301244

    Iron is what holds the Oxygen in your blood. If you have any breathing problems then you need to have ALL the iron in your blood that you can get. When you get to low 20’s on your FEV’s, and I hope you don’t, you can feel the difference in a few days when you start getting extra iron.

    Profile photo of cindyloucindylou
    Member
    #171205169771

    My iron has been very low for a long time. I am not classically anemic (my hemoglobin is fine) but I have no “reserve” iron… I’m pretty sure it’s called iron-deficiency anemia. I can’t take supplements, though, because they stop me up so badly! I drink a lot of green smoothies with spinach (even if your little one doesn’t like spinach, he’s almost certain to like a nice fruit smoothie! I’ve been able to sneak green smoothies past even the pickiest kids), and when I start having symptoms I eat a lot of prunes, which I’ve found are probably the fastest boost to my iron levels. For whatever reason, they tend to get particularly low in the spring and summer – I think it has something to do with sweating out electrolytes.

    Profile photo of cindyloucindylou
    Member
    #171205301207

    My iron has been very low for a long time. I am not classically anemic (my hemoglobin is fine) but I have no “reserve” iron… I’m pretty sure it’s called iron-deficiency anemia. I can’t take supplements, though, because they stop me up so badly! I drink a lot of green smoothies with spinach (even if your little one doesn’t like spinach, he’s almost certain to like a nice fruit smoothie! I’ve been able to sneak green smoothies past even the pickiest kids), and when I start having symptoms I eat a lot of prunes, which I’ve found are probably the fastest boost to my iron levels. For whatever reason, they tend to get particularly low in the spring and summer – I think it has something to do with sweating out electrolytes.

    Profile photo of PrinterPrinter
    Participant
    #171205169758

    Ask his CF Doctor about SOURCE CF Multivitamins.

    Bill

    76 year old male with CF. Mutations Delta F508 & V562I; A1006E, 5T/12. MAC, 100% PI, Diagnosed at age 47 with first known symptoms at age 3.

    Profile photo of PrinterPrinter
    Participant
    #171205301196

    Ask his CF Doctor about SOURCE CF Multivitamins.

    Bill

    76 year old male with CF. Mutations Delta F508 & V562I; A1006E, 5T/12. MAC, 100% PI, Diagnosed at age 47 with first known symptoms at age 3.

    Profile photo of imported_Momto2Momto2
    Participant
    #171205169732

    momtohazel, the following are high in iron. Eating these in conjunction with foods high in vitamin C helps the iron absorbtion. Red meat, egg yolks, collard greens, prunes, raisins, iron-enriched cereal and breads, oysters, clams, scapplops, lentils, chick peas, soybeans, liver, artichoke. Keep in mind that cranberries, spinach, and soda all contains compounds which block iron.

    ddf508, diagnosed at 3 months in 1971, CFRD, GERD, Gout, FEV1 24%. Married 20 years, 2 daughters 10 and 14. Undergoing Eval at Duke for lung transplant.

    Profile photo of imported_Momto2Momto2
    Participant
    #171205301177

    momtohazel, the following are high in iron. Eating these in conjunction with foods high in vitamin C helps the iron absorbtion. Red meat, egg yolks, collard greens, prunes, raisins, iron-enriched cereal and breads, oysters, clams, scapplops, lentils, chick peas, soybeans, liver, artichoke. Keep in mind that cranberries, spinach, and soda all contains compounds which block iron.

    ddf508, diagnosed at 3 months in 1971, CFRD, GERD, Gout, FEV1 24%. Married 20 years, 2 daughters 10 and 14. Undergoing Eval at Duke for lung transplant.

    Profile photo of momtohazelmomtohazel
    Member
    #171205168953

    my little one has had anemia and her numbers have improved with diet…i’ll be very curious to see her levels now (won’t check again for another 3 months). we did try to increase red meat but other things we have done include prunes (high in iron) and cooking in cast iron. trying to serve iron rich foods with foods high in vit C to improve absorption. good luck

    Profile photo of momtohazelmomtohazel
    Member
    #171205300499

    my little one has had anemia and her numbers have improved with diet…i’ll be very curious to see her levels now (won’t check again for another 3 months). we did try to increase red meat but other things we have done include prunes (high in iron) and cooking in cast iron. trying to serve iron rich foods with foods high in vit C to improve absorption. good luck

    #1763752

    Hi there, my sons blood work came back with low levels of iron. I have been reading lots of information on the Internet. Have any of you experienced issues of low iron? I know he doesn’t like red meat, and fish. Wondering if this could be a reason why he looks so pale. Also, he drinks so many dairy/Carnation drinks, could this be an issue. Thanks for any advise in advance. We have cf clinic today, and I’m hoping for another good weight gain

    Sarah

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