I have been doing MAC treatment for 6 months. I gradually started getting side effects from the drugs and finally got so miserable I could not stand it (joint pain, joint swelling, “lady issues”, bloating, horrible migraines and almost constant regular headaches and lower back pain, and nausea). My infection disease doc took me off all the meds for two weeks to see if the symptoms go away. I am on day 2 of my drug holiday and my belly is less bloated, lower back pain is almost all gone.
Any MAC/NTM patients out there have to take a drug holiday?? Does the holiday help?? Did they put you back on the drugs?? Same dosage, lower dosage?? I am concerned that I won’t be able to finish my treatments and be left with a cavity in my lung. Any advice/support would be great.