For ten years, we have been focused on the patient community at CysticFibrosis.com. Our model is very unique. The convenience of the Internet allows us to interact with our sponsors, ask questions, offer information and feedback, and get answers!

The face of healthcare is in constant change and evolution. The Internet offers us connection, candor and control.

CysticFibrosis.com continues to build relationships that strengthen the voice of Cystic Fibrosis. We look to the thought leaders, and leading professionals in the field for support, information and hope.

We are patient driven and will continue to seek the professionals to interact with us directly. Innovation, creation and connectivity are the resolutions and goals we have set for ourselves in 2007. Stay with us!

A dream of ours was realized this year. We wished to bring the DME and Pharma companies to our thriving online Cystic Fibrosis community. Direct to patient and consumer interaction is our goal.

Together with PARI, we have "crossed over" and truly are interactive. Our online community makes suggestions, offers feedback and asks lots of questions. The best of all, PARI answers with HOPE. Visit PARI at the adult forums and bring your questions today! Go to the PARI Thread.

We will have more of PARI to come in 2007 including complete information on cleaning and caring for your nebulizers and the equipment.

Diagnosis is an extremely stressful time for our new members. Ambry Genetics is another example of how a worldwide leader in specialized genetic testing offers INFORMATION to our members who are searching for answers. We are fortunate to have Steve Keiles, a knowledgeable genetic counselor, answering our members at the Families Forum with kindness and respect. Go to the Ambry Genetics Thread.

Smiths Medical acapellaŽ choice has followed suit at Cysticfibrosis.com. They have taken advantage of our unique model and also have begun interacting with patients and caregivers directly.

Click here to view an example of how the community mentors and makes suggestions about the best products available to them.

Patients are the best source of feedback. They offer firsthand comments and advice to the product managers and manufacturers. This is empowerment!

Links:
          www.PARI.com
          www.AmbryGen.com
          www.Smiths-Medical.com