social media feature pic jan 2017
Living With CFNews & Events

New on our Cystic Fibrosis Social Media (@knowcf)

We are active on social media – want to know the latest news? Please follow the links to see what is new on our Cystic Fibrosis Social Media channels. Post your own comment – or just see what others are saying. February 2017   Facebook: Facebook.com/KnowCF Brian’s Genentech Pulmozyme Video: Click …

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AdheranceLiving With CFResearchTechnology

Evolution of a New App for Cystic Fibrosis management

Behind The Scenes With A New App For Managing Your Cystic Fibrosis By Jeanne Barnett, founder of CysticFibrosis.com In my 21 years of operating CysticFibrosis.com and from reading over two million messages in our forums, I’ve learned that CF patients generate fascinating data that is valuable to other patients, caregivers, …

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