social media feature pic jan 2017
Living With CFNews & Events

New on Social Media – February Edition

We’re active on social media – want to know the latest?¬†Please follow the links to view some of the most recent social media news. Post your own comment – or just see what others are saying. February 2017   Facebook: Facebook.com/KnowCF Brian’s Genentech Pulmozyme Video:¬†Click here to watch video Jordan’s …

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AdheranceLiving With CFResearchTechnology

Evolution of a New App for CF

Behind The Scenes With A New App For Managing Your CF By Jeanne Barnett, founder of CysticFibrosis.com In my 21 years of operating CysticFibrosis.com and from reading over two million messages in our forums, I’ve learned that CF patients generate fascinating data that is valuable to other patients, caregivers, doctors, …

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