The Bible for Transplants: make data driven decisions about lung transplant
The Scientific Registry of Transplant Recipients (SRTR) helps patients make data driven decisions about their transplant, such as lung transplants in Cystic Fibrosis.
Lots of great information in The Scientific Registry of Transplant Recipients (SRTR)
The registry supports ongoing evaluation of the status of solid organ transplantation in the United States. It is administered by the Chronic Disease Research Group of the Minneapolis Medical Research Foundation.
SRTR responsibilities include designing and carrying out rigorous scientific analyses of data and disseminating information to the transplant community, including transplant programs, organ procurement organizations, policy makers, transplant professionals, transplant recipients, organ donors and donor families, and the general public. In addition, SRTR helps facilitate research in the area of solid organ transplantation by providing access to data for qualified researchers interested in studying various aspects of solid organ transplantation.
The U.S. organ transplantation system employs evidence-based allocation policy development through collaborative efforts between the transplant community, SRTR, and the Organ Procurement and Transplantation Network (OPTN). While policy making is OPTN’s responsibility, SRTR plays a critical role in policy development through ongoing data analyses designed to provide policy makers with the information necessary to make informed decisions.
The entire system benefits from transparency, consensus, and cooperation among all interested parties including the public, SRTR, OPTN, the Health Resources and Services Administration (HRSA), and the Advisory Committee on Organ Transplantation (ACOT).