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Sunday, May 11, 2008

Cystic Fibrosis Quality of Life Program
This program is specifically designed for people impacted by CF. The program addresses: Stress, Grief, Time Management, Anger, Communication Issues, and the spectrum of Psychological, Social and Spiritual Aspects of living and coping with CF.
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What is Cystic Fibrosis?
An inherited life-threatening disease involving a genetic mutation that disrupts the cystic fibrosis transmembrane regulator (CFTR) protein, resulting in poorly hydrated, thickened mucous secretions in the lungs.
What is CysticFibrosis.com?
A leading online resource and support for those affected by cystic fibrosis. We’re 7500 members strong, 104 countries represented, e-Patients, experts, industry leaders, over 200,000 searchable messages and 20,000 CF related topics, over 700 bloggers, 100 CF videos and so much more to support, educate and strengthen hope.

News Feed


Rocking on for cystic fibrosis research (The Philadelphia Inquirer)
DETROIT - There are days when 26-year-old Emily Schaller can barely breathe because of cystic fibrosis - and playing in smoke-filled bars hasn't helped.
Cystic fibrosis fundraiser planned at six locations (The Buffalo News)
Great Strides, the largest cystic fibrosis fundraiser in the country, is coming to Western New York this month.
Cystic Fibrosis Walk Held In Janesville (WISC-TV Madison)
JANESVILLE, Wis. -- May is National Cystic Fibrosis Awareness Month, and on Saturday, Rock County residents took great strides toward helping to find a cure.
Events aim to shed light on cystic fibrosis (Stevens Point Journal)
When Don Soderberg discovered his granddaughter had cystic fibrosis, he knew he had to do something to spread the word about the disease.
Cystic fibrosis walk to take place May 18 (Brick Township Bulletin)
The Cystic Fibrosis Foundation's Great Strides: Taking Steps to Cure Cystic Fibrosis fundraising walk will take place at 11 a.m. May 18 at the Point Pleasant Beach Bandstand.
Walk For Cystic Fibrosis (KAMC Lubbock)
This weekend you can walk to help cure cystic fibrosis! Many families in lubbock are dealing with cystic fibrosis, a disease that affects the lungs and digestive system. Hunter Anderson is just one of those affected by this life-threatening disease.
Night at the Races to fight cystic fibrosis (East Brunswick Sentinel)
ANight at the RacesGiftAuction to benefit the Cystic Fibrosis Foundation and 3- year-oldAnthony Silvestri ofOld Bridge and otherswho are battling cystic fibrosis, a progressive and life-threatening lung and gastrointestinal disease, is set for 7 p.m. onMay 9 at Sayreville Veterans of Foreign Wars, JerneeMill Road. Post timewill be 7:30 p.m.
Geneva woman to lead walk for cystic fibrosis (Daily Herald)
Geneva business owner Sherie McGowan and her Cocoon family will be co-hosting the first Great Strides Walk for Cystic Fibrosis at Island Park in Geneva on May 17.
Shasta High School students make great strides for cystic fibrosis (The Record Searchlight)
Hats off to Steve Beck, history teacher; Michelle Somers, cheerleader coach; and all the Shasta High students who helped form the team Chelsa’s Cure Finders and participated in the Great Strides Walk for Cystic Fibrosis recently.
Residents work to find cystic fibrosis cure with fundraising event (The Southeast Sun)
Every year that “Great Strides,” an annual event to fund research to cure cystic fibrosis, takes place, the life expectancy of an individual who is fighting cystic fibrosis is extended a year.
The Forum Categories display our most popular CF health and discussion topics. Opportunities to join in discussions are created for the CF Patient and Caregiver and now we introduce our Relevant Sponsors.  For further topic category information, Click here >
Post Title Member Posted
D.C. or Baltimore area? Aspiemom 10:16
To blog or not to blog.... jfarel 9:54
Happy Birthday to mylittlekaylee03 kayleesgrandma 9:48
CF centers JazzysMom 9:30
Happy Mother's Day pnhuffman 9:02

Blog Title Blogger Posted
My Mom - Carol bittyhorse23 9:04
I'll shave my legs just in case you touch them... Breezy 8:36
My day got saved mamerth 8:18
Yep, thinking too much! thefrogprincess 7:10
first century... up Mt. Wachusett cdale613 6:24

Recipe name Category Member
Chili Cups American lightNlife
Super-Cal Chocolate Milkshake American vmhoward
Shrimp spread American Tiffany

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