Sunday, May 11, 2008
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What is Cystic Fibrosis? |
| An inherited life-threatening disease involving a genetic mutation that disrupts the cystic fibrosis transmembrane regulator (CFTR) protein, resulting in poorly hydrated, thickened mucous secretions in the lungs. |
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What is CysticFibrosis.com? |
| A leading online resource and support for those affected by cystic fibrosis. We’re 7500 members strong, 104 countries represented, e-Patients, experts, industry leaders, over 200,000 searchable messages and 20,000 CF related topics, over 700 bloggers, 100 CF videos and so much more to support, educate and strengthen hope. |
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- Rocking on for cystic fibrosis research (The Philadelphia Inquirer)
- May 11, 2008 at 03:37 AM
- DETROIT - There are days when 26-year-old Emily Schaller can barely breathe because of cystic fibrosis - and playing in smoke-filled bars hasn't helped.
- Cystic fibrosis fundraiser planned at six locations (The Buffalo News)
- May 11, 2008 at 06:51 AM
- Great Strides, the largest cystic fibrosis fundraiser in the country, is coming to Western New York this month.
- Cystic Fibrosis Walk Held In Janesville (WISC-TV Madison)
- May 11, 2008 at 01:08 AM
- JANESVILLE, Wis. -- May is National Cystic Fibrosis Awareness Month, and on Saturday, Rock County residents took great strides toward helping to find a cure.
- Events aim to shed light on cystic fibrosis (Stevens Point Journal)
- May 09, 2008 at 04:52 AM
- When Don Soderberg discovered his granddaughter had cystic fibrosis, he knew he had to do something to spread the word about the disease.
- Cystic fibrosis walk to take place May 18 (Brick Township Bulletin)
- May 08, 2008 at 08:35 PM
- The Cystic Fibrosis Foundation's Great Strides: Taking Steps to Cure Cystic Fibrosis fundraising walk will take place at 11 a.m. May 18 at the Point Pleasant Beach Bandstand.
- Walk For Cystic Fibrosis (KAMC Lubbock)
- May 08, 2008 at 07:33 PM
- This weekend you can walk to help cure cystic fibrosis! Many families in lubbock are dealing with cystic fibrosis, a disease that affects the lungs and digestive system. Hunter Anderson is just one of those affected by this life-threatening disease.
- Night at the Races to fight cystic fibrosis (East Brunswick Sentinel)
- May 08, 2008 at 08:38 PM
- ANight at the RacesGiftAuction to benefit the Cystic Fibrosis Foundation and 3- year-oldAnthony Silvestri ofOld Bridge and otherswho are battling cystic fibrosis, a progressive and life-threatening lung and gastrointestinal disease, is set for 7 p.m. onMay 9 at Sayreville Veterans of Foreign Wars, JerneeMill Road. Post timewill be 7:30 p.m.
- Geneva woman to lead walk for cystic fibrosis (Daily Herald)
- May 08, 2008 at 02:22 AM
- Geneva business owner Sherie McGowan and her Cocoon family will be co-hosting the first Great Strides Walk for Cystic Fibrosis at Island Park in Geneva on May 17.
- Shasta High School students make great strides for cystic fibrosis (The Record Searchlight)
- May 08, 2008 at 10:34 AM
- Hats off to Steve Beck, history teacher; Michelle Somers, cheerleader coach; and all the Shasta High students who helped form the team Chelsa’s Cure Finders and participated in the Great Strides Walk for Cystic Fibrosis recently.
- Residents work to find cystic fibrosis cure with fundraising event (The Southeast Sun)
- May 07, 2008 at 04:14 PM
- Every year that “Great Strides,” an annual event to fund research to cure cystic fibrosis, takes place, the life expectancy of an individual who is fighting cystic fibrosis is extended a year.
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