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Monday, January 5, 2009

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What is Cystic Fibrosis?
An inherited life-threatening disease involving a genetic mutation that disrupts the cystic fibrosis transmembrane regulator (CFTR) protein, resulting in poorly hydrated, thickened mucous secretions in the lungs.
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A leading online resource and support for those affected by cystic fibrosis. We’re 8500 members strong, 104 countries represented, e-Patients, experts, industry leaders, over 350,000 searchable messages and 30,000 CF related topics, over 1000 bloggers, a hundred CF videos and so much more to support, educate and strengthen hope.

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Cystic Fibrosis Patients' Self-assessment Of Health Can Predict Prognosis (Medical News Today)
Adult Cystic Fibrosis patients can provide important information that helps to predict their prognosis, according to research that asked 223 adult CF patients to assess their own health and well-being. "We wished to see whether patients themselves had clinically relevant insight to their disease, and we found that they did," said lead author of the study, Janice Abbott, Ph.D.
Girl with cystic fibrosis bags deer (The Greenwood Commonwealth)
Libbey Porto didn�t waste any time claiming her first deer Thursday, bagging an eight-point buck less than two hours into a hunt in Philipp. �I thought I wasn�t going to shoot it. I thought I was going to miss it,� she said.
NC to require cystic fibrosis screening (News 14 Carolina)
RALEIGH -- Beginning in January, North Carolina will require screening of all newborn babies for cystic fibrosis, an incurable genetic disease that affects the lungs and digestive system.
Marshfield lobsterman giving away lobsters to raise awareness of cystic fibrosis (The Patriot Ledger)
Don Hebert is giving away free lobsters at the town pier in Marshfield today at 11 a.m. to raise awareness of cystic fibrosis. �
Walking for Cystic Fibrosis research (Scoop.co.nz)
Determined Wellington student Emma Daken has just seven more walking days before she triumphs in her quest to set a record as youngest Kiwi to walk the length of NZ � for Cystic Fibrosis research.
Cystic Fibrosis Patients' Self-assessment Of Health Can Predict Prognosis (Science Daily)
Adult cystic fibrosis patients can provide important information that helps to predict their prognosis, according to research that asked 223 adult CF patients to assess their own health and well-being.
Write & roll: Game inspires man to write fiction (Temple Daily Telegram)
DID YOU KNOW? Fifteen percent of all profits from �Dream Paladin,� by M. Dennis (the the pen name of Michael Flanery of Moody) will go to the Texas Gulf Coast Chapter of the National Cystic Fibrosis Foundation in honor of Flanery�s 8-year-old cousin, Cali Brown of Deer Park.
Apple's Jobs has hormone imbalance, will stay CEO (AP via Yahoo! News)
Apple Inc. founder Steve Jobs, a survivor of pancreatic cancer whose gaunt appearance in the past year has alarmed the Mac and iPod lovers who look to him as an oracle, said Monday he has an easily treated hormone imbalance and will remain in charge of the company.
Nanotechnology: the science of tiny raises big hopes and also big fears (The Canadian Press via Yahoo! Canada News)
EDMONTON - It's the speck of dirt on the foot of a flea, and within it may be locked the Utopian dreams of a great beginning or the repressed fears of apocalyptic end times.
Apple's Jobs has hormone imbalance, will stay CEO (San Francisco Chronicle)
Apple Inc. founder Steve Jobs, a survivor of pancreatic cancer whose gaunt appearance in the past year has alarmed the Mac and iPod lovers who look to him as an oracle, said Monday he has an easily treated hormone imbalance and will remain in charge of the...
The Forum Categories display our most popular CF health and discussion topics. Opportunities to join in discussions are created for the CF Patient and Caregiver and now we introduce our Relevant Sponsors.  For further topic category information, Click here >
Post Title Member Posted
Pictures of Yourself! rnjessica 7:03
Questin for those who use Albuterol in an inhaler carmick 7:02
Anyone else have a slowww eater? grassisgreener 6:49
Recipes for Kids with CF grassisgreener 6:45
Clinic visit this week rnjessica 6:40
TTC rnjessica 6:33
stress!!! rnjessica 6:28
In for a few days... Landy 6:26
Hello... from Holli Jade... Kari's sister JazzysMom 6:26
Okay I need your HELP ! KellRochelle 6:09

Blog Title Blogger Posted
Cheyenne update debs2girls 7:38
Pics of the kids. They are getting so big. sydney97 7:02
i'm going to... semperfiohana 4:31
Lobster anyone? JazzysMom 1:57
No backing out now debs2girls 9:02
OBITUARY OF THE LATE MR. COMMON SENSE kayleesgrandma 3:44
New Year's Eve Ready2Dance Jan 4 7:31
Union Square and a Cup of Tea Imogene Jan 4 7:23
I figured out the picture thing! Ready2Dance Jan 4 7:20
small steps momtoCory Jan 4 6:28

Recipe name Category Member
Hot Artichoke Dip American Joan
Chocolate Surprise Biscuit Ring American Joan
Peek-a-Boo Chicken American LightNLife

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