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We offer the Cystic Fibrosis community an active forum, blogs and medical articles, and a wealth of other resources:

1Forum

Our forums continue to be an excellent way for the community to connect, and a searchable source of information – 1 million threads! Join in, or just browse the topics to see what others are saying.

Visit the forum

We regularly publish member blogs and interesting articles, relevant to Cystic Fibrosis, in our Living with CF Blog. Browse all the articles here and feel free to comment!

Read the blog

Browse our topics with resources related to Cystic Fibrosis, such social security benefits, filing your taxes, support through counselling or financial/travel assistance.

Go to Resources

About Cysticfibrosis.com

CysticFibrosis.com supports the largest and oldest global Cystic Fibrosis community on the web, founded in 1996, comprising patients, caregivers, healthcare professionals and industry service providers. In addition to the forums, the site contains information on clinical trials, gene therapy, testing, associations, research and events.

We believe in harnessing the knowledge of the patient and caregiver community to achieve participatory healthcare. Our CF community holds a wealth of knowledge on the disease, challenges they face and possible solutions they envision.

Read our website disclaimer.

Newly diagnosed? Read this article and learn more about Cystic Fibrosis and mutations (written by mom of a young child with CF)

How to join this community?

  • It is free to join the forums, you can register as a new forum member here.
  • You can let us know what you think and comment on blog posts without registering
  • Join us on social media: @knowcf. We are on facebook and twitter
  • Donate to us via our non-profit, to keep this website active and support our other worthy projects. Learn more about CFTechnology.org

The CFTechnology Foundation is created to give education & technology to our Cystic Fibrosis community!

Email us to find out how to donate

What members are saying

“CysticFibrosis.com allows me to connect with the CF community like no other way I have ever seen. It’s easy, fun and most important I am one click away from someone who knows what I am going through”

– Emily, 27 w/CF

“I think it is safe to say that I learned 90% of what I know about CF from this site. I honestly don’t know where I’d be without it”

– Mother of 3 year old w/CF