Cystic Fibrosis Blog
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APP for CF
New project with Vaultt
We want to introduce you to an exciting new project we have launched at CysticFibrosis.com. After years of effort, we are proud to announce that we
April 1, 2024
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My Journey with Cystic Fibrosis: Overcoming Obstacles and Embracing Self-Care – by Zain Arif
Life-Changing News Hello there! I’m Zain Arif, a 19-year-old who’s been living with Cystic Fibrosis (CF) since I was just a baby. Being diagnosed with
May 7, 2023
CF and Parenthood
Parenting with Cystic Fibrosis – by Megan Mancuso
Deciding to Get Pregnant The choice to have children is filled with uncertainty. What if my baby is born with higher needs than usual? What
May 7, 2023
CF and Parenthood
Life is Good! – by Kevin Munroe, 65 years young
*Note from the editor: Meet Kevin, a 65-year old “Grampy” with Cystic Fibrosis! My first thought was: I bet he has some interesting stories to
May 7, 2023
CF and Parenthood
Leaving a Legacy That Lasts – by Jessica McDearman
As a young child, I dreamed of one day having a little girl to call my own. I practiced swaddling and rocking my favorite stuffed
May 7, 2023
CF and Parenthood
All in God’s timing – by Ashton Barton
Hello, my name is Ashton Barton. I’m 35 years old, wife to a good Godly man, and a mom to not 1, 2, 3, or
May 7, 2023
MORE BLOGS, NEWS AND RESEARCH ARTICLES
Cystic Fibrosis and Menopause
June 22, 2022
Why People With CF Need to Know About HPV
June 22, 2022
Trikafta’s Life Changing Effects – by Nathan Mundi
May 31, 2022
Trikafta, The Equalizer – by Ron Bartell
May 31, 2022
No Longer 18 Years – By Ashley Wilson
May 31, 2022
It’s a Marathon Not a Sprint – by Nicholas Breton
May 31, 2022
Acupuncture for Cystic Fibrosis
May 9, 2022
Reflexology for Cystic Fibrosis
May 9, 2022
How Breathwork Can Help Cystic Fibrosis
April 3, 2022
Food, Glorious Food! – by Sarah Leigh Milczanowski
April 3, 2022
Aoife P. Rafter – My Battles with Cystic Fibrosis & Cervical Cancer
February 28, 2022
Jillian needs a kidney! Type O
December 3, 2021
Large Scale CF survey on Personal Health and Wellness
January 9, 2021
Anxiety in CF: Can CBD oil help?
February 2, 2020
CFTechnology and CreativeDestructionLab
October 3, 2019
Suggestions to Help You Manage Cystic Fibrosis at College
August 20, 2019
Gratitude: came in my inmail!
November 23, 2018
Going Back to School with Cystic Fibrosis (from our Archives)
September 8, 2018
Why Cystic Fibrosis and Blockchain? by LittleLab4CF
August 29, 2018
Welcome to CFTechnology.org video
July 7, 2018
SSDI for people with Cystic Fibrosis
July 2, 2018
Medicare and Cystic Fibrosis
May 7, 2018
Cure-E-Us: World Orphan Drug Congress Part 2
May 5, 2018
Does Medicare Cover Lung Transplants?
April 26, 2018
Coping with the Loss of a Spouse from CF
April 17, 2018
Cure-E-Us Where is our Survey Leading?
March 22, 2018
ENF Scholarship and CF summer research program applications now open
February 21, 2018
LittleLab4CF on the potential of an enormously valuable Genomic Diary
February 10, 2018
Fashion tips and favorite products for my Cystic Fibrosis body
January 31, 2018
Survey: Future Casting for our Cystic Fibrosis Community! (Updates)
January 29, 2018
A New Hope for CF! (Planetary Biosciences Review – Jan 2018)
January 23, 2018
Blockchain, Cystic Fibrosis and Linnia
January 17, 2018
What’s new on the Cystic Fibrosis social media pages (@KnowCF)?
January 10, 2018
Cure-E-Us…Cystic Fibrosis 2018!
December 29, 2017
A Young Mom is Exploring BlockChain Technology
December 9, 2017
Gratitude! Remembering Blake’s example!
November 15, 2017
Equal Access to Treatment for All with Cystic Fibrosis in the US?
September 28, 2017
An Interview: Jeanne Barnett and RXDigitalMarketing
September 19, 2017
TauriNAC Now Available
September 13, 2017
A Conversation with Gunnar Esiason
September 12, 2017
D3forME Transdermal Vitamin D Patch: do you qualify?
August 19, 2017
Orkambi has simply changed my life…a Cystic Fibrosis reflection
August 19, 2017
Digital Spirometry and the Cystic Fibrosis patient
August 4, 2017
New on Cystic Fibrosis Social Media (@knowCF)
August 3, 2017
An App for Cystic Fibrosis to bring Data to Market
July 24, 2017
New on Cystic Fibrosis Social Media (@knowCF)
July 10, 2017
What is Cystic Fibrosis – Infographic
June 21, 2017
Amber’s Cystic Fibrosis Miracle
June 16, 2017
Personal Indrepta Results
May 23, 2017
Potato Chip Cookies (Cystic Fibrosis diet)
May 22, 2017
Lemon Olive Oil Cake (Cystic Fibrosis Diet)
May 14, 2017
Creamy Grape Salad Recipe (Cystic Fibrosis diet)
May 8, 2017
Yogurt Gummies recipe (Cystic Fibrosis diet)
May 8, 2017
New on Cystic Fibrosis Social Media (@knowCF)
April 30, 2017
Indrepta C Lottery Winners
April 15, 2017
AbbVie scholarship for students with cystic fibrosis
April 8, 2017
New on Cystic Fibrosis Social Media (@knowCF)
April 4, 2017
Indrepta C now available for nonsense mutations
March 17, 2017
Respiratory Health and Air Pollution
March 7, 2017
Does Ivacaftor Affect Lung Bacteria in Cystic Fibrosis?
February 27, 2017
New on our Cystic Fibrosis Social Media (@knowcf)
February 26, 2017
Research on CF and Exercise in Cystic Fibrosis treatment
February 23, 2017
Evolution of a New App for Cystic Fibrosis management
February 20, 2017
Pulmozyme May Extend Lives of People Without Cystic Fibrosis
February 12, 2017
New Guidelines for Cystic Fibrosis Diagnosis
February 7, 2017
New on our Cystic Fibrosis Social Media (@knowcf)
January 29, 2017
Cystic Fibrosis treatment: Foam roller benefits – a member blog
January 29, 2017
A Day with Portable Genomics for Cystic Fibrosis management
January 24, 2017
Cystic Fibrosis Lung Microbiome: Diversity and Lung Function
January 11, 2017
CFTR Function and Cigarette Smoke
January 7, 2017
Potential benefits of honey in Cystic Fibrosis Treatment
January 2, 2017
Vitamin D Supplements May Help Improve Lung Function in Cystic Fibrosis
December 22, 2016
Member post: goals and managing expectations with Cystic Fibrosis
December 16, 2016
The Lung Microbiome and Dysbiosis
November 18, 2016
Make Friends with your Legislators! Tell them about Cystic Fibrosis.
November 16, 2016
Redesigning Prescription Medication Inserts
November 13, 2016
Webinar: Infection Prevention During Bronchoscopy
November 9, 2016
10 Ways to Help When a Friend is Diagnosed With a Chronic Disease
November 9, 2016
North American Cystic Fibrosis Conference 2016
November 2, 2016
Thank YOU! This research is complete!
October 28, 2016
Mom takes on Vertex CEO about pricey Cystic Fibrosis Treatment Drugs
October 26, 2016
Copper in Hospitals to Limit Cross-Infection
October 5, 2016
Distinguishing Relapse from Reinfection in MAC
September 27, 2016
Rare Disease Patient Advocacy Summit
September 19, 2016
How Much Do Orphan Drugs Cost?
September 14, 2016
Survey Shows A Lot of People Save Leftover Painkillers
September 13, 2016
13 year-old with Cystic Fibrosis is a Top Surfer in South Carolina
September 7, 2016
A New Tool for Cystic Fibrosis Lung Monitoring
August 31, 2016
Organ Donation – Surprising Facts
August 23, 2016
Drug Development Pipeline for Cystic Fibrosis treatment
August 9, 2016
Survey Filled – Thank you!
June 16, 2016
Fecal Microbial Transplants and “Gut” by Guilia Enders
June 16, 2016
Bugs into Drugs: Beyond Fecal Transplants
June 16, 2016
DNA ‘cages’ deliver drugs with zap of light
June 13, 2016
Matching Volunteers to Clinical Trials by App
June 12, 2016
Understanding Pharma Controversies in the News
June 8, 2016
Looking for a career choice? What to study?
May 25, 2016
SpiroCall: Lung Function Measured by Phone
May 16, 2016
Wabi Baby Steam Sterilizer Contest
May 9, 2016
The Science of Character
April 30, 2016
Documentary: Sisters living with Cystic Fibrosis
April 27, 2016
When a Bad Animal Model is Good: Cystic Fibrosis
April 23, 2016
SuperHero DNA
April 21, 2016
Better Lung Scanning Technology
April 16, 2016
Survey of Cystic Fibrosis Patients by GeneFo
April 13, 2016
Individual Counseling Offered
April 11, 2016
Xbox Kinect to Monitor Lung Function
March 30, 2016
In the News: Inhaled Levofloxacin & QIDP Designation
March 23, 2016
Put your legislators on your team!
March 14, 2016
Surprising Benefits from CF Research
March 9, 2016
What is an Anti-Inflammatory Diet?
February 29, 2016
It’s Been a Good Life Dad: My Son’s Struggle with Cystic Fibrosis
February 27, 2016
3D Printed Ear, Bone, and Muscle Tissue
February 24, 2016
Financial: Your Questions from the 2015 Survey
February 23, 2016
Dr. Warren Warwick, The Bell Curve
February 20, 2016
UCSD’s 3D Printed Liver Cells Most Liver-like Yet
February 17, 2016
Enzymes – Frequently Asked Questions
February 15, 2016
Toddler Bubby, taking enzymes for Cystic Fibrosis treatment
February 15, 2016
Brene Brown on Empathy
February 12, 2016
Sharktank: Jim Caldwell
February 11, 2016
Your Questions on Nutraceuticals
February 11, 2016
How cystic fibrosis promotes lung infections
February 10, 2016
We Lobby
February 9, 2016
Featured: A Love Worth Giving
February 6, 2016
Cystic Fibrosis treatment: Hypertonic Saline Questions
February 4, 2016
YOUR DATA! Your Questions on Self Management
February 3, 2016
Trial results of Ivacaftor in Cystic Fibrosis children ages 2-5
January 22, 2016
Genome editing with CRISPR-Cas9
January 13, 2016
New to CysticFibrosis.com
November 23, 2015
Newly Diagnosed: What is Cystic Fibrosis
November 22, 2015
Cystic Fibrosis testing: Genetic testing and sweat test
November 22, 2015