Cystic Fibrosis Blog

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New project with Vaultt
We want to introduce you to an exciting new project we have launched at CysticFibrosis.com. After years of effort, we are proud to announce that we

My Journey with Cystic Fibrosis: Overcoming Obstacles and Embracing Self-Care – by Zain Arif
Life-Changing News Hello there! I’m Zain Arif, a 19-year-old who’s been living with Cystic Fibrosis (CF) since I was just a baby. Being diagnosed with

Parenting with Cystic Fibrosis – by Megan Mancuso
Deciding to Get Pregnant The choice to have children is filled with uncertainty. What if my baby is born with higher needs than usual? What

Life is Good! – by Kevin Munroe, 65 years young
*Note from the editor: Meet Kevin, a 65-year old “Grampy” with Cystic Fibrosis! My first thought was: I bet he has some interesting stories to

Leaving a Legacy That Lasts – by Jessica McDearman
As a young child, I dreamed of one day having a little girl to call my own. I practiced swaddling and rocking my favorite stuffed

All in God’s timing – by Ashton Barton
Hello, my name is Ashton Barton. I’m 35 years old, wife to a good Godly man, and a mom to not 1, 2, 3, or

MORE BLOGS, NEWS AND RESEARCH ARTICLES

Cystic Fibrosis and Menopause

Why People With CF Need to Know About HPV




Trikafta’s Life Changing Effects – by Nathan Mundi

Trikafta, The Equalizer – by Ron Bartell

No Longer 18 Years – By Ashley Wilson

It’s a Marathon Not a Sprint – by Nicholas Breton

Acupuncture for Cystic Fibrosis

Reflexology for Cystic Fibrosis


How Breathwork Can Help Cystic Fibrosis

Food, Glorious Food! – by Sarah Leigh Milczanowski





Aoife P. Rafter – My Battles with Cystic Fibrosis & Cervical Cancer
Jillian needs a kidney! Type O
Large Scale CF survey on Personal Health and Wellness
Anxiety in CF: Can CBD oil help?
CFTechnology and CreativeDestructionLab
Suggestions to Help You Manage Cystic Fibrosis at College

Gratitude: came in my inmail!
Going Back to School with Cystic Fibrosis (from our Archives)
Why Cystic Fibrosis and Blockchain? by LittleLab4CF

Welcome to CFTechnology.org video


SSDI for people with Cystic Fibrosis


Medicare and Cystic Fibrosis
Cure-E-Us: World Orphan Drug Congress Part 2


Does Medicare Cover Lung Transplants?

Coping with the Loss of a Spouse from CF

Cure-E-Us Where is our Survey Leading?


ENF Scholarship and CF summer research program applications now open


LittleLab4CF on the potential of an enormously valuable Genomic Diary


Fashion tips and favorite products for my Cystic Fibrosis body
Survey: Future Casting for our Cystic Fibrosis Community! (Updates)

A New Hope for CF! (Planetary Biosciences Review – Jan 2018)

Blockchain, Cystic Fibrosis and Linnia

What’s new on the Cystic Fibrosis social media pages (@KnowCF)?



Cure-E-Us…Cystic Fibrosis 2018!

A Young Mom is Exploring BlockChain Technology

Gratitude! Remembering Blake’s example!

Equal Access to Treatment for All with Cystic Fibrosis in the US?

An Interview: Jeanne Barnett and RXDigitalMarketing

TauriNAC Now Available

A Conversation with Gunnar Esiason



D3forME Transdermal Vitamin D Patch: do you qualify?

Orkambi has simply changed my life…a Cystic Fibrosis reflection

Digital Spirometry and the Cystic Fibrosis patient

New on Cystic Fibrosis Social Media (@knowCF)

An App for Cystic Fibrosis to bring Data to Market


New on Cystic Fibrosis Social Media (@knowCF)




What is Cystic Fibrosis – Infographic

Amber’s Cystic Fibrosis Miracle




Personal Indrepta Results


Potato Chip Cookies (Cystic Fibrosis diet)

Lemon Olive Oil Cake (Cystic Fibrosis Diet)


Creamy Grape Salad Recipe (Cystic Fibrosis diet)

Yogurt Gummies recipe (Cystic Fibrosis diet)


New on Cystic Fibrosis Social Media (@knowCF)


Indrepta C Lottery Winners

AbbVie scholarship for students with cystic fibrosis

New on Cystic Fibrosis Social Media (@knowCF)




Indrepta C now available for nonsense mutations


Respiratory Health and Air Pollution

Does Ivacaftor Affect Lung Bacteria in Cystic Fibrosis?

New on our Cystic Fibrosis Social Media (@knowcf)

Research on CF and Exercise in Cystic Fibrosis treatment

Evolution of a New App for Cystic Fibrosis management

Pulmozyme May Extend Lives of People Without Cystic Fibrosis

New Guidelines for Cystic Fibrosis Diagnosis


New on our Cystic Fibrosis Social Media (@knowcf)

Cystic Fibrosis treatment: Foam roller benefits – a member blog

A Day with Portable Genomics for Cystic Fibrosis management



Cystic Fibrosis Lung Microbiome: Diversity and Lung Function

CFTR Function and Cigarette Smoke

Potential benefits of honey in Cystic Fibrosis Treatment


Vitamin D Supplements May Help Improve Lung Function in Cystic Fibrosis


Member post: goals and managing expectations with Cystic Fibrosis




The Lung Microbiome and Dysbiosis

Make Friends with your Legislators! Tell them about Cystic Fibrosis.

Redesigning Prescription Medication Inserts

Webinar: Infection Prevention During Bronchoscopy

10 Ways to Help When a Friend is Diagnosed With a Chronic Disease

North American Cystic Fibrosis Conference 2016

Thank YOU! This research is complete!

Mom takes on Vertex CEO about pricey Cystic Fibrosis Treatment Drugs




Copper in Hospitals to Limit Cross-Infection

Distinguishing Relapse from Reinfection in MAC

Rare Disease Patient Advocacy Summit

How Much Do Orphan Drugs Cost?

Survey Shows A Lot of People Save Leftover Painkillers


13 year-old with Cystic Fibrosis is a Top Surfer in South Carolina

A New Tool for Cystic Fibrosis Lung Monitoring

Organ Donation – Surprising Facts


Drug Development Pipeline for Cystic Fibrosis treatment







Survey Filled – Thank you!

Fecal Microbial Transplants and “Gut” by Guilia Enders

Bugs into Drugs: Beyond Fecal Transplants

DNA ‘cages’ deliver drugs with zap of light

Matching Volunteers to Clinical Trials by App

Understanding Pharma Controversies in the News



Looking for a career choice? What to study?

SpiroCall: Lung Function Measured by Phone


Wabi Baby Steam Sterilizer Contest


The Science of Character

Documentary: Sisters living with Cystic Fibrosis

When a Bad Animal Model is Good: Cystic Fibrosis

SuperHero DNA



Better Lung Scanning Technology

Survey of Cystic Fibrosis Patients by GeneFo

Individual Counseling Offered


Xbox Kinect to Monitor Lung Function


In the News: Inhaled Levofloxacin & QIDP Designation


Put your legislators on your team!

Surprising Benefits from CF Research

What is an Anti-Inflammatory Diet?

It’s Been a Good Life Dad: My Son’s Struggle with Cystic Fibrosis

3D Printed Ear, Bone, and Muscle Tissue

Financial: Your Questions from the 2015 Survey

Dr. Warren Warwick, The Bell Curve

UCSD’s 3D Printed Liver Cells Most Liver-like Yet

Enzymes – Frequently Asked Questions

Toddler Bubby, taking enzymes for Cystic Fibrosis treatment

Brene Brown on Empathy

Sharktank: Jim Caldwell

Your Questions on Nutraceuticals

How cystic fibrosis promotes lung infections

We Lobby

Featured: A Love Worth Giving

Cystic Fibrosis treatment: Hypertonic Saline Questions

YOUR DATA! Your Questions on Self Management

Trial results of Ivacaftor in Cystic Fibrosis children ages 2-5

Genome editing with CRISPR-Cas9

New to CysticFibrosis.com

Newly Diagnosed: What is Cystic Fibrosis
