CysticFibrosis.com supports the largest and oldest global Cystic Fibrosis community on the web, founded in 1996, comprising patients, caregivers, healthcare professionals and industry service providers. In addition to the forums, the site contains information on clinical trials, gene therapy, testing, associations, research and events.
We believe in harnessing the knowledge of the patient and caregiver community to achieve participatory healthcare. Our CF community holds a wealth of knowledge on the disease, challenges they face and possible solutions they envision.
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Newly diagnosed? Read this article and learn more about Cystic Fibrosis and mutations (written by mom of a young child with CF)
"CysticFibrosis.com allows me to connect with the CF community like no other way I have ever seen. It’ s easy, fun and most important I am one click away from someone who knows what I am going through"
Emily, 27 w/CF
"I think it is safe to say that I learned 90% of what I know about CF from this site. I honestly don’ t know where I’ d be without it"