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Coping with the Loss of a Spouse from CF

Guest Blog We strive to be optimistic about life with CF, but loss of a loved one is a harsh reality.  A  member of our community reached out to us at CysticFibrosis.com in hopes of sharing his experience as a spouse of someone who lived with CF. Jesse and Ashley’s Story …

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Cure E Us

Cure-E-Us Where is our Survey Leading?

Of the 1112 participants for our survey “Discovery, Research, and Profit” www.CFTechnology.org only two claimed to be physicians! One from Florida and one from California. 53% are patients, and 44% are caregivers. Who has the authority?  Since 1996, when our forums at CysticFibrosis.com began, you may have wondered: “Where are …

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AI

Artificial Intelligence (AI)as told to Imogene by LittleLab4CF

Text by LittleLab4CF…helpful links added by Imogene. Big data was applied to the first human genome that involved many international efforts. Basic genetics It was cost compared with the first atomic bomb. Craig Venter cut through it with AI and massively parallel processing. A virtual human is the end game …

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ENF Scholarship and CF summer research program applications now open

  Applications for the Elizabeth Nash Foundation scholarship and summer CF research programs are now available. Please find relevant information below. Scholarship program The Elizabeth Nash Foundation awards scholarships to assist persons with CF to pursue undergraduate and graduate degrees. Grants range from $1,000 to $2,500 and are made directly to …

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DNA strand with genetic code and base formulas

LittleLab4CF on the potential of an enormously valuable Genomic Diary

This blog was reproduced from a post by LittleLab4CF , a Super Moderator on the cysticfibrosis.com forum.  “I found myself in a lively discussion with one of my doctor’s about the business of Genomics and what they really want. Dr. “Nancy” was remarking that she’d completed her Christmas shopping, buying 23&Me for pretty much …

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Egg cooker nebulizer sterilizer white

DIY nebulizer sterilizer hack for Cystic Fibrosis treatments (member story)

**Note: this is not medical advice and this method has not been approved by any medical professionals or suppliers. It is just a workaround method used by someone with CF. It should only be tried on nebulizer parts that can be boiled** My DIY nebulizer sterilizer hack I have a confession: …

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FavoriteProducts

Fashion tips and favorite products for my Cystic Fibrosis body

With CF, unexpected body changes can make getting dressed in the morning a frustrating experience. Exhibit A: What size will I be in the morning? Although your friends may remark that they too would ‘love to eat anything and not gain weight’, or declare that if they had ‘your figure …

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Survey: Future Casting for our Cystic Fibrosis Community! (Updates)

Thanks to 860 participants for taking our survey at www.cftechnology.org. A survey can be a tool to future cast!  and this one is doing just that. Most of the participants are from the USA (90%), though we have invited a global community! 49 states are represented and the most participants …

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A new hope for CFers

A New Hope for CF! (Planetary Biosciences Review – Jan 2018)

To brighten this post up, I will review the exciting supplements Indrepta and TauriNAC using Star Wars parlance… I’m a 46 year old CFer with my original lungs, living in London, England. Following a virus in November last year, the Phantom Menace of mucous was giving me a hard time …

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Blockchain, Cystic Fibrosis and Linnia

I want you all to know we are looking into the Blockchain company Ethereum and this email suggests we have similar goals. Currently: 781 of you have taken our survey at www.cftechnology.org and 90% agree: “We should be paid for our valuable data.” Read how the missions match up nicely… …

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