PGCFT

Evolution of a New App for CF

Behind The Scenes With A New App For Managing Your CF By Jeanne Barnett, founder of CysticFibrosis.com In my 21 years of operating CysticFibrosis.com and from reading over two million messages in our forums, I’ve learned that CF patients generate fascinating data that is valuable to other patients, caregivers, doctors, …

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heart fibrosis

Pulmozyme May Extend Lives of People Without CF

Pulmozyme might be able to extend the lives of people who don’t have CF according to a recent article in Science Daily, “Fighting age-related fibrosis to keep organs young.” Since it was approved by the FDA in 1993, Pulmozyme (dornase alpha or DNase) has been used by many people with …

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New Guidelines for CF Diagnosis

New Guidelines for CF Diagnosis A group of 32 scientists from nine countries have updated the guidelines for CF diagnosis. They published an article last month in The Journal of Pediatrics and the synopsis can be found here in Science Daily. The scientists looked at data from people with CF …

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Support us through AmazonSmile at no additional cost to you

Did you know that cftechnology.org is registered with AmazonSmile?   AmazonSmile is a simple and automatic way for you to support CFtechnology.org (our registered charitable organization) every time you shop, at no cost to you. If you purchase something on AmazonSmile, Amazon donates 0.5% of the price of your eligible AmazonSmile purchases to …

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social media feature pic jan 2017

New on Social Media

We are active on social media – want to know the latest? Please follow the links to view some of the most recent social media news.  Post your own comment – or just see what others are saying. January 2017 Facebook: Facebook.com/KnowCF Facebook Member Post: A member of our community asks “Anyone …

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Foam roller blog

Foam roller benefits – a member blog

I recently received some questions about foam rolling, as a result of a personal blog Top remedies or tools for CF related ailments, which listed foam rolling as one of my favourite CF remedies. Questions such as “What is a foam roller?” and “How does one use it?” – Here is a bit more …

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nu me

A Day with Portable Genomics

  Using the Portable Genomics App   CFtechnology and Portable Genomics are proud to create a partnership using a new, customizable app! In the Digital Age, it is no surprise that apps are finding their way into the medical field. Technology is everywhere, so why not harness the power of …

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DNA CRISPR

Radio Interview: CRISPR Gene Editing

“There has never been a more powerful biological tool or one with more potential to both improve the world and endanger it.” For an in-depth look at the progress being made and the potential of CRISPR, the gene editing tool, listen to this radio interview on National Public Radio. Cystic …

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PGCFT

Portable Genomics and CFTechnology.org Partnership

From PRNewswire Portable Genomics and CFTechnology.org have entered into a partnership to enable cystic fibrosis patients to better collect, manage and share important biometrics with caregivers, researchers and the pharmaceutical industry News provided by Portable Genomics Jan 17, 2017, 06:04 ET SAN DIEGO, Jan. 17, 2017 /PRNewswire/ — Portable Genomics …

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Miracle Flights: free medically-related air travel for ill patients, including CF

Struggling to cover the cost of air travel to receive your medical care? Miracle Flights assists patients through free commercial air travel to obtain special medical care. Read more about this fantastic organization and how to apply below…   Blog article written in conjunction with Brooke Freeman, Community Outreach Officer …

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