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What is Cystic Fibrosis – Infographic

What is Cystic Fibrosis? View this handy infographic which explains, in a summarized format, what Cystic Fibrosis is, including symptoms, genetics, diagnosis and treatment. Feel free to share this infographic and at the bottom of the page, you will find a handy printable version of ‘What is Cystic Fibrosis’ (adapted to letter-sized …

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Amber’s Cystic Fibrosis Miracle

Introduction My name is Amber Newman and I’m twenty-five years old, soon to be twenty-six. I was diagnosed with CF when I was seven months old due to failure to thrive. I’ve been a member at CysticFibrosis.com since I was twelve years old. I’ve been able to connect with an …

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Lung Clearance Index Improved in Children Ages 6-11 on Ivacaftor/Lumacaftor

Ivacaftor/Lumacaftor Improves Lung Clearance Index Score In Children A new phase 3 study, led by The Hospital for Sick Children at the University of Toronto, Canada, has been completed on the CF treatment ivacaftor/lumacaftor in children ages 6-11 with two F508-del CFTR mutations. In a group of 206 children from …

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graphic by By Lbudd14 (Own work) [CC BY-SA 3.0 (http://creativecommons.org/licenses/by-sa/3.0)], via Wikimedia Commons

Outcomes and Tolerances in Cystic Fibrosis Treatment Lumacaftor/Ivacaftor

Last month, the results of a study were published that looked at the progress and side effects of the cystic fibrosis treatment lumacaftor/ivacaftor in 116 people with CF during a year after starting the medication. 46 (39.7%) people reported side effects related to lumacaftor/ivacaftor, and of the side effects, 82.2% …

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Cystic Fibrosis diet: Recipe Contest! Win one of 4 x $50 Gift Cards

The Cystic Fibrosis Diet Recipe Contest is open again! Enter a recipe that forms part of your Cystic Fibrosis Diet by 31 May 2017, to stand a chance to receive one of 4 $50.00 Amazon gift cards. Your recipe can include ANY of the following category ideas: Recipes for weight gain …

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New on Cystic Fibrosis Social Media (@knowCF)

What’s new on the Cystic Fibrosis social media pages (@KnowCF)? We are active on social media – want to know the latest news? Please follow the links to see what is new on our Cystic Fibrosis Social Media channels. Post your own comment – or just see what others are …

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The yogurt and kefir milk in the picture are lowfat but other brands do carry whole or full-fat versions.

Full-Fat Fermented Dairy May Cause Less Inflammation Than Regular Dairy

In the cystic fibrosis diet, dairy products are often used to reach high-calorie targets, and new research has shown that it may be beneficial to focus on full-fat fermented dairy rather than regular dairy, because full-fat fermented dairy may cause less cardiovascular inflammation. A study published in the British Journal …

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New drug (Thymosin alpha 1) discovery: potential for Cystic Fibrosis treatment

According to an article published on www.sciencedaily.com, researchers have discovered a potential new drug to treat and stop the progression of cystic fibrosis. While many other promising drugs are in the pipeline, we here at cysticfibrosis.com will be keeping a keen eye on further developments of this medication. Read the …

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Indrepta C Lottery Winners

Planetary Biosciences is holding a Give Away Lottery on the cysticfibrosis.com group, for 7 people receiving one bottle of Indrepta C, to celebrate the release of this new product.  If you want to be part of this lottery, please send an email to [email protected] with the Subject: Indrepta Lottery.  Please read …

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AbbVie scholarship for students with cystic fibrosis

Thanks to 25-years of medical advancement, the goal of pursuing higher education for many students with cystic fibrosis, an inherited chronic disease that affects the lungs and digestive system, is more achievable than ever before. AbbVie announced the opening of the application period for the AbbVie CF Scholarship program, marking …

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