Cystic Fibrosis Resources
Browse our resources relating to Cystic Fibrosis, such as social security benefits, filing your taxes, counselling or financial/travel assistance.
CF Tax Deductions
Often people with Cystic Fibrosis and families with children with Cystic Fibrosis are not aware of the tax deductions they may be able to make to help offset the costs of the condition. Watch the videos and learn more….
What Is Cystic Fibrosis (CF)?
Cystic Fibrosis (CF) is an inherited genetic disease caused by a mutation of the CFTR gene which affects multiple systems of the body, such as the respiratory, intestinal and reproductive systems.
CF is is in your unborn or newborn baby’s “genes,” half of which are inherited from you and half of are inherited from the other parent. Nothing you did caused CF! I vividly recall for months my husband blaming himself, thinking he had “caused” our son’s CF by painting the house while I was pregnant, even though I had always left when he was painting. But nothing he did, or you did, caused CF. And you are no more to blame for your unborn or newborn baby’s CF than you for are his or her blue or brown eyes.
New Guidelines for Cystic Fibrosis Diagnosis
A group of 32 scientists from nine countries have updated the guidelines for Cystic Fibrosis diagnosis. They published an article last month in The Journal of Pediatrics and the synopsis can be found here in Science Daily.
The scientists looked at data from people with Cystic Fibrosis worldwide to categorize hundreds of mutations, to better define the likelihood that someone with a mutation will have the disease and to better personalize treatment.