Acupuncture for Cystic Fibrosis

What is Acupuncture? Acupuncture derives from traditional Chinese medicine and has been practiced for over 5000 years. It involves inserting very thin needles through the skin at different key points on the body. These needles are about the thickness of a human hair, so they don’t hurt when inserted, (they …

READ MORE →

Reflexology for Cystic Fibrosis

Where My Interest in Reflexology Stemmed From As I have mentioned in previous blog posts, it was only at the age of 27 through oncology recovery, that I first started experimenting with complementary therapies. Once I tried them I became hooked! Nothing had ever helped me so much with my …

READ MORE →

Surviving Through the Pandemic Isolation in Ireland with CF

Saying Good-Bye to One Emotional Roller-coaster… January 2019. Fatigued, emotional, drained, fragile but eternally grateful, I was ready to take life by the horns as I had just finished 25 sessions of radiotherapy. It had been an extremely tough 10 months, having to leave my new home, job and friends …

READ MORE →

How Breathwork Can Help Cystic Fibrosis

Deprived of a Beneficial Therapy? Although I’ve been in and out of hospitals since my diagnosis of Cystic Fibrosis at 9 years of age, I have never had a CF specialist of any kind teach me the basics on how to breathe correctly or optimally. This sounds a bit bizarre …

READ MORE →

Food, Glorious Food! – by Sarah Leigh Milczanowski

A LITTLE BIT ABOUT ME Hi all readers, I am Sarah. I’m 34 years old, I live in the UK and I have Cystic Fibrosis. The topics below are issues I have faced myself, sought help with and overcame so I wish to try and help others I really do …

READ MORE →

My Top Tips for Sleepless Nights with Cystic Fibrosis – by Aoife P. Rafter

I’m sure many of you are aware of the importance of sleep in order for the body to recover from illness and reach a point of homeostasis – when all the systems of the body are balanced and can work together. But unfortunately, having CF can often come in hand …

READ MORE →

Introducing Alison Smith – founder of Cystic Fibrosis Mummies

My name is Alison. I am 38, I am married to Adam and we live in Northamptonshire, Uk,  in a house we own. We have a daughter, Harriet, who is 12 years old and we have two cocker spaniels and a cat. Very normal. Very ‘average’. If you were to peek …

READ MORE →

Different with Cystic Fibrosis: The struggle of feeling ‘different’ from your peers at school and how to overcome this – Cerys Upstone

Everyone wants to blend in to an extent and be accepted. We all follow the status quo, and whilst we all reveal different personalities, there is a societal expectation to follow the same sort of path in life. In school especially, there is an inbuilt wariness of those who are …

READ MORE →

Aoife P. Rafter – My Battles with Cystic Fibrosis & Cervical Cancer

The Trip of a Lifetime The trip of a lifetime was quickly approaching. I was feeling fitter and healthier than ever from all the training I was doing. I mean after all, I needed to increase some body strength in order to carry a 10kg backpack full of all my …

READ MORE →

Roche Virtual Summit Lauren Brenneman speaks Innovation and the CF community

Lauren Brenneman of CFTEchnology speaks about the mission of patients to take charge of their data at the Roche Virtual Summit Patient Panel

READ MORE →