New on Cystic Fibrosis Social Media (@knowCF)
missalexsbp
April 4, 2017
What’s new on the Cystic Fibrosis social media pages (@KnowCF)?
We are active on social media – want to know the latest news? Please follow the links to see what is new on our Cystic Fibrosis Social Media channels. Post your own comment – or just see what others are saying.
March 2017
Facebook:
Facebook.com/KnowCF
Click here to watch video: #LungsforLibby
Crossing for a Cure – an endurance paddle challenge: Facebook Member Post
Sixty Five Roses Princess Ball: Facebook Member Post
Vertex Pharmaceuticals grant winner is seeking submissions for a website which showcases all the ways in which people with CF show their creativity: Facebook Member Post
Aerobika Cleaning Instructions: Product Reply
Twitter.com/KnowCF
#UKNeedsOrkambi: Twitter MemberPost:
Facebook.com/CFTechnology.org
Instagram.com/KnowCF
Photo: Where do you store your medication overflow?
Photo: What do you do while doing nebs and Vest?
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