Your Cystic Fibrosis Data is Valuable! Watch the Video…Take the Survey!
We hope you agree! Tell us what you think..Be Counted! Take the SURVEY NOW! Video by Lance 2020 ~ 1 minute Survey: 9 minutes
Webinar: Infection Prevention During Bronchoscopy
Laurence Muscarella Ph.D. and Atul Mehta M.D. A detailed webinar (71:30 minutes) can be viewed online. Highlights: The latest research into bronchoscope cross-contamination issues. Most frequent causes of infection risks Most importantly: what everyone who uses bronchoscope should know to prevent risks Click to view the Webinar
Rare Disease Patient Advocacy Summit
Later this week, Jeanne Barnett will be attending the fifth annual RARE Patient Advocacy Summit run by Global Genes in Huntington Beach, California. The goal of this year’s RARE Patient Advocacy Summit is for patients, caregivers, and advocates to walk away equipped with actionable next steps whether you have been …
The Science of Character
The Science of Character (8 mins) explores the neuroscience and social science that proves that we can shape who we are, and who we want to be. Learn More…
Documentary: Sisters living with Cystic Fibrosis
Olivia Shivas from Attitude Pictures in New Zealand wrote to cysticfibrosis.com about a documentary series her organization has created that explores the lives of people living with serious health conditions and disabilities. One of their documentaries is about two sisters, Kristie and Nikki, who are young moms with cystic fibrosis. …
It’s Been a Good Life Dad: My Son’s Struggle with Cystic Fibrosis
It’s Been a Good Life Dad: My Son’s Struggle with Cystic Fibrosis by Jerry E. Hendon Author Jerry Hendon writes: I have written a book about my son, Kevin, who died of cystic fibrosis in 1986 at age 18. The book, It’s Been a Good Life, Dad: My Son’s Struggle …
Toddler Bubby, taking enzymes for Cystic Fibrosis treatment
80%-90% of people with Cystic Fibrosis need to take enzyme capsules before they eat, as part of their Cystic Fibrosis treatment. In Cystic Fibrosis, as the lungs produce thick, sticky mucus, the pancreas also makes the same type of mucus that blocks the release of enzymes needed for digestion. When …
Genome editing with CRISPR-Cas9
This video explains how research in genome editing may help treat genetic diseases like CF in the future.
Lauren Brenneman – Hartford Hospital cystic fibrosis case study
CysticFibrosis.com welcomes Lauren Brenneman (LouLou) to the CysticFibrosis.com team. Lauren will help to carve out strategic paths as we move forward and serve the CF community. She will also be involved on many video productions we have planned in 2015. This is Lauren’s latest video and as you can see she …