Your Cystic Fibrosis Data is Valuable! Watch the Video…Take the Survey!

Imogene

We hope you agree! Tell us what you think..Be Counted! Take the SURVEY NOW! Video by Lance 2020 ~ 1 […]

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Webinar: Infection Prevention During Bronchoscopy

Imogene

Laurence Muscarella Ph.D. and Atul Mehta M.D. A detailed webinar (71:30 minutes) can be viewed online. Highlights: The latest research […]

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Rare Disease Patient Advocacy Summit

Imogene

Later this week, Jeanne Barnett will be attending the fifth annual RARE Patient Advocacy Summit run by Global Genes in […]

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The Science of Character

Imogene

The Science of Character (8 mins) explores the neuroscience and social science that proves that we can shape who we are, and […]

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Documentary: Sisters living with Cystic Fibrosis

Melissa75

Olivia Shivas from Attitude Pictures in New Zealand wrote to cysticfibrosis.com about a documentary series her organization has created that […]

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It’s Been a Good Life Dad: My Son’s Struggle with Cystic Fibrosis

Imogene

It’s Been a Good Life Dad: My Son’s Struggle with Cystic Fibrosis by Jerry E. Hendon Author Jerry Hendon writes: […]

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Toddler Bubby, taking enzymes for Cystic Fibrosis treatment

Imogene

80%-90% of people with Cystic Fibrosis need to take enzyme capsules before they eat, as part of their Cystic Fibrosis […]

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Brene Brown on Empathy

Imogene
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Genome editing with CRISPR-Cas9

Melissa75

This video explains how research in genome editing may help treat genetic diseases like CF in the future.

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Lauren Brenneman – Hartford Hospital cystic fibrosis case study

Melissa75

CysticFibrosis.com welcomes Lauren Brenneman (LouLou) to the CysticFibrosis.com team. Lauren will help to carve out strategic paths as we move […]

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