Living With CFResearchResourcesSupport

Why your ADHD Symptoms Might Actually be Trauma

– By Tina Clarke Results from studies like the TIDES study indicate that the prevalence of ADHD symptoms in children and adults with CF are significantly higher than the rest of the population, as are anxiety and depression. Researchers find some connections between anxiety and depression and whether the patient …

Living With CFResourcesRespiratory DiseaseSupport

Breathwork for Parents and PWCF (People With Cystic Fibrosis)

– By Aoife Rafter How Breathwork Works I’ve written about Breathwork specifically for people with respiratory conditions on here before, but now I want to teach you how parents, caregivers, and people with CF can use Breathwork for benefits other than improving respiratory health. If the recent global pandemic has …

Alternative MedicineLiving With CFResourcesSupport

The Stress of CF in a “Normal” Life

– By Tina Clarke Stress is the number one cause of disease, and although stress obviously doesn’t cause cystic fibrosis, it can make a major appearance in our everyday lives and exacerbate or worsen our symptoms. The vast improvements in average life expectancy in those of us with CF means …

DiagnosisLiving With CFResources

What I Wish I Knew When I Was Diagnosed With Cystic Fibrosis

– By Aoife Rafter I was actually diagnosed quite late in life with CF, at the age of 9. Up until this point, I was told that I had severe asthma. But once my two younger sisters came along, my Mum knew something was up so we investigated further. Finally, …

AdvocacyAlternative MedicineLiving With CFResources

Cystic Fibrosis and Menopause

– Written by Aoife P. R. 28 and Menopausal Okay, so you’re probably wondering why I’m writing about this topic at such a young age. You’re probably thinking, “What could this young person possibly have to tell me about this latter in-life hormonal change?!” And that’s fair, I mean I …

AdvocacyLiving With CFResources

Why People With CF Need to Know About HPV

– Written by Aoife P. R. My Experience with HPV + Cervical Cancer As some readers may know from my previous posts, I was diagnosed with Cervical Cancer at just 27 years of age. This was a total shock my family and I at the time, as having CF kind …

FinancialLiving With CFResourcesSupport

SSDI for people with Cystic Fibrosis

Does Cystic Fibrosis Qualify as a Disability for SSDI? Learn more about SSDI and Cystic Fibrosis. Article written by Danielle Roberts, a Medicare insurance expert. You can learn more about her and her team at *** About 30,000 people have cystic fibrosis in the U.S., according to the Cystic Fibrosis Foundation. As …

Living With CFResources

Medicare and Cystic Fibrosis

Learn more about how Medicare covers Cystic Fibrosis. Article written by Danielle K Roberts, a Medicare insurance expert at Boomer Benefits, where she and her team help educate consumers about Medicare works. *** Dealing with health insurance is complicated when you have a chronic disorder like cystic fibrosis—and Medicare can be even more …

Living With CFResourcesTransplants

Does Medicare Cover Lung Transplants?

Learn more about how the various parts of Medicare pay for treatment before, during and after a Lung Transplant. Article written by Danielle K Roberts, co-founder at Boomer Benefits, a licensed insurance agency that helps baby boomers navigate Medicare in 47 states. *** Lung transplants are complex surgical procedures which can …

FinancialLiving With CFResources

ENF Scholarship and CF summer research program applications now open

  Applications for the Elizabeth Nash Foundation scholarship and summer CF research programs are now available. Please find relevant information below. Scholarship program The Elizabeth Nash Foundation awards scholarships to assist persons with CF to pursue undergraduate and graduate degrees. Grants range from $1,000 to $2,500 and are made directly to …