APP for CF

Discovery, Research, and the Economics of Human Data OUR REQUEST: As supporters of our community, we are reaching out to you. CFTechnology.org is at a tipping point- we are poised to become members of the Creative Destruction Labs 2020 cohort and are asking for letters of support for this next, …

Memories of my great day in Philly, April 10, 2019 at the Ieee.org Deep Tech Pharma, Philadelphia. As I sit here with business cards in front of me, I am remembering my time exploring Deep Tech pharma, with some old and new friends. Firstly, many of you know that my …

Copyright © 2019 NetNoggin, LLC. All Rights Reserved. Technology’s Place in the Lives of Patients with Cystic Fibrosis Newcomer M1, Conger D1, Rudnick C1, Noland D1 Authors Information: 1. NetNoggin, LLC, Frederick, MD USA email: info@netnoggin.netTechnology and Cystic Fibrosis Big data is telling us that despite cystic fibrosis (CF) being …

We have a new introductory video about CFTechnology.org. Thank you to the talented Blake (with CF) for the fantastic job on the creation of this animated video. If you like this video, please like and share, as we are still trying to attract the right funding and partners to make …

Our blog appears in the DIA global forum. It has the results of our initial survey (which took place from 2017-2018) where 1200 of you responded, both patients and caregivers. CFTechnology.org, a non-profit, global online community of over 18,000 cystic fibrosis (CF) patients and caregivers, has launched a study to …

The survey: “Discovery, Research, and Profit”  has ended and I have presented at the World Orphan Drug Congress in Maryland. I presented the story of how the survey came to be, and our motivation for wanting to move forward with building an app as we have identified an unmet need.  You …