What I Wish I Knew When I Was Diagnosed With Cystic Fibrosis
– By Aoife Rafter I was actually diagnosed quite late in life with CF, at the age of 9. Up until this point, I was told that I had severe asthma. But once my two younger sisters came along, my Mum knew something was up so we investigated further. Finally, …
New Guidelines for Cystic Fibrosis Diagnosis
New Guidelines for Cystic Fibrosis Diagnosis A group of 32 scientists from nine countries have updated the guidelines for Cystic Fibrosis diagnosis. They published an article last month in The Journal of Pediatrics and the synopsis can be found here in Science Daily. The scientists looked at data from people …
10 Ways to Help When a Friend is Diagnosed With a Chronic Disease
This heartfelt article filled with personal experience will give you 10 great ways to respond when really “you may feel speechless” at some surprising news a friend may give you. Full of empathy and gentleness. This is one we all need as we struggle to be our best selves for all …
Flourescent Sensor is a new Low-Cost Tool for Cystic Fibrosis diagnosis
Read the article here on sciencedaily.com “Scientists have developed a new diagnostic test for cystic fibrosis. The new device provides a cheaper, easier way to detect levels of chloride in sweat, which are elevated in cystic fibrosis patients.” “Cystic fibrosis is caused by two faulty copies of a gene that affects …
Cystic Fibrosis testing: Genetic and Rare Diseases Information Center
The National Institutes of Health (NIH) publishes up-to-date information about cystic fibrosis testing on its Genetic and Rare Disease Information Center webpage (GARD). This is their FAQ about testing and resources. It discusses what situations warrant genetic testing, what tests are available and how much they cost, and how to …
Newly Diagnosed: What is Cystic Fibrosis
What is Cystic Fibrosis and how are genetics involved? This article shares some helpful information if you are newly diagnosed. Written by Aboveallislove Introduction Welcome to CysticFibrosis.com. If you are new to Cystic Fibrosis because you recently learned your unborn or newborn baby has, or may have, Cystic Fibrosis, please …