A New Model for Patient Engagement for Cystic Fibrosis Patients and Caregivers
Our blog appears in the DIA global forum. It has the results of our initial survey (which took place from […]
Your Cystic Fibrosis Data is Valuable! Watch the Video…Take the Survey!
We hope you agree! Tell us what you think..Be Counted! Take the SURVEY NOW! Video by Lance 2020 ~ 1 […]
Thank YOU! This research is complete!
All of the goals were met in 20 hours! This community loves to be part of research. Thank you! […]
Survey Shows A Lot of People Save Leftover Painkillers
More than half of patients who get a prescription for opioid painkillers have leftover pills and keep them to use […]
Survey Filled – Thank you!
Dear CF Community Members, This survey is FILLED. Thank you for your interest and/or participation. Please email info@cysticfibrosis.com if you […]
Survey of Cystic Fibrosis Patients by GeneFo
As reported on the website Cystic Fibrosis News Today,GeneFo, the online platform for organizing different chronic disease communities, surveyed 2,400 […]
Financial: Your Questions from the 2015 Survey
Your Financial Questions From Our Survey in April 2015 How can you lower our out of pocket expenses in […]
Your Questions on Nutraceuticals
From our Survey in 2015 Qualitative Research: YOUR Questions What are some natural treatments that are safe and effective […]
Cystic Fibrosis Resource and Information Needs Survey
Written by Melissa75 and Imogene In the Spring of 2015, we surveyed the CF community on resource and information needs. […]