A New Model for Patient Engagement for Cystic Fibrosis Patients and Caregivers

Imogene

Our blog appears in the DIA global forum. It has the results of our initial survey (which took place from […]

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Your Cystic Fibrosis Data is Valuable! Watch the Video…Take the Survey!

Imogene

We hope you agree! Tell us what you think..Be Counted! Take the SURVEY NOW! Video by Lance 2020 ~ 1 […]

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Thank YOU! This research is complete!

Imogene

All of the goals were met in 20 hours!   This community loves to be part of research. Thank you! […]

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Survey Shows A Lot of People Save Leftover Painkillers

Imogene

More than half of patients who get a prescription for opioid painkillers have leftover pills and keep them to use […]

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Survey Filled – Thank you!

Imogene

Dear CF Community Members, This survey is FILLED. Thank you for your interest and/or participation. Please email info@cysticfibrosis.com if you […]

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Survey of Cystic Fibrosis Patients by GeneFo

Melissa75

As reported on the website Cystic Fibrosis News Today,GeneFo, the online platform for organizing different chronic disease communities, surveyed 2,400 […]

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Financial: Your Questions from the 2015 Survey

Imogene

Your Financial Questions From Our Survey in April 2015   How can you lower our out of pocket expenses in […]

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Your Questions on Nutraceuticals

Imogene

From our Survey in 2015 Qualitative Research: YOUR Questions   What are some natural treatments that are safe and effective […]

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Cystic Fibrosis Resource and Information Needs Survey

Melissa75

Written by Melissa75 and Imogene In the Spring of 2015, we surveyed the CF community on resource and information needs. […]

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