How to manage teenage years with Cystic Fibrosis – Cerys Upstone

Editor

Teenage years – ‘The best years of your life!’ they say. Finding independence, taking on new responsibilities, making friends, partying, […]

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Large Scale CF survey on Personal Health and Wellness

Imogene

The Cystic Fibrosis (CF) community is ripe for a new model of patient engagement in research, with medical data collection […]

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Gratitude: came in my inmail!

Imogene

We all can reach back in our memories and think of something or someone who made a difference and just […]

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Cure-E-Us: World Orphan Drug Congress Part 2

Imogene

  The Initial Industry CFTR Screen Programs consisted of Epix, Genzyme, Galapagos, Fold, Amri, Aurora, and CombinatoRx Preston Campbell the […]

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Gratitude! Remembering Blake’s example!

Imogene

We all can reach back in our memories and think of something or someone who made a difference and just […]

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Market Research for Pulmozyme Users: Gift Cards given for an on line interview.

Imogene

Again, this year we have been asked to participate in on-line Market Research. We are seeking three different groups for […]

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Your Cystic Fibrosis Data is Valuable! Watch the Video…Take the Survey!

Imogene

We hope you agree! Tell us what you think..Be Counted! Take the SURVEY NOW! Video by Lance 2020 ~ 1 […]

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Personal Indrepta Results

jimcaldwell

I wanted to report the latest news we are seeing with my daughter using Indrepta. She is 19 years old […]

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Cystic Fibrosis fundraiser: Support us through AmazonSmile at no additional cost to you

Editor

Did you know that cftechnology.org is registered with AmazonSmile?   An easy way to support a Cystic Fibrosis fundraiser! AmazonSmile is […]

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