My Journey with Cystic Fibrosis: Overcoming Obstacles and Embracing Self-Care – by Zain Arif

Editor

Life-Changing News Hello there! I’m Zain Arif, a 19-year-old who’s been living with Cystic Fibrosis (CF) since I was just […]

Read More

Life is Good! – by Kevin Munroe, 65 years young

Editor

*Note from the editor: Meet Kevin, a 65-year old “Grampy” with Cystic Fibrosis! My first thought was: I bet he […]

Read More

Tips on Taking Care of Your Lungs with COVID-19 (from a successful Cystic Fibrosis patient)

Imogene

The cystic fibrosis community is at high risk for serious complications from COVID-19. Through a recent survey of the online […]

Read More

Gratitude: came in my inmail!

Imogene

We all can reach back in our memories and think of something or someone who made a difference and just […]

Read More

Why Cystic Fibrosis and Blockchain? by LittleLab4CF

Imogene

LittleLab4CF  David Orthman, PhD How can BlockChain facilitate Pharmaceutical companies go-to-market strategy? The greatest barrier to doing business is inertia. […]

Read More

LittleLab4CF on the potential of an enormously valuable Genomic Diary

Editor

This blog was reproduced from a post by LittleLab4CF , a Super Moderator on the cysticfibrosis.com forum.  “I found myself in a lively discussion […]

Read More

Gratitude! Remembering Blake’s example!

Imogene

We all can reach back in our memories and think of something or someone who made a difference and just […]

Read More

An Interview: Jeanne Barnett and RXDigitalMarketing

Imogene

Buddy Scalera of RXDigital Marketing interviewed Jeanne Barnett (founder of CysticFibrosis.com) on August 31, 2017. If you are curious about […]

Read More

The Unidos pela Vida Institute – spreading knowledge about Cystic Fibrosis in Brazil

Editor

Join us today as we learn more about the Unidos pela Vida Institute for Cystic Fibrosis in Brazil. Thank you […]

Read More

Orkambi has simply changed my life…a Cystic Fibrosis reflection

Imogene

A member of our community with Cystic Fibrosis reflects on two years since starting Orkambi, a medication used to treat […]

Read More
1 2