Organ Donation – Surprising Facts

Melissa75

Cystic Fibrosis patients make up 12 percent of the waiting list for lungs. New York State changed the legal age […]

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Probiotics and Prebiotics in Food – benefits in the cystic fibrosis diet

Melissa75

PROBIOTICS yogurt kefir milk buttermilk soy/nut milks fermented soft cheeses (also gouda, cheddar, swiss, parmesan) kombucha tea sauerkraut (unpasteurized) kimchi […]

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Cystic Fibrosis treatment: lung transplant facts and member experiences

Melissa75

Lung transplantation is something a person with Cystic Fibrosis might consider late in the progression of the disease, when life […]

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Cystic Fibrosis testing: Genetic and Rare Diseases Information Center

Melissa75

The National Institutes of Health (NIH) publishes up-to-date information about cystic fibrosis testing on its Genetic and Rare Disease Information […]

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Cystic Fibrosis symptoms: Mayo clinic’s sinusitis treatment suggestions

Imogene

For many patients, chronic sinusitis is a part of their many Cystic Fibrosis symptoms. From the Mayo Clinic, about sinusitis: […]

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Social Security Disability Benefits for people with Cystic Fibrosis

Melissa75

Introducing Deanna Power, the Director of Community Outreach for Social Security Disability Help. She wrote this article for our community […]

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Financial: Your Questions from the 2015 Survey

Imogene

Your Financial Questions From Our Survey in April 2015   How can you lower our out of pocket expenses in […]

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Enzymes – Frequently Asked Questions

Imogene

Newly Diagnosed/Infancy The doctors want me to give the enzymes to my baby in food but he’s only a week […]

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Cystic Fibrosis treatment: Hypertonic Saline Questions

Imogene

These question were posed by CysticFibrosis.com and answered by: Michael McPeck, RRT Respiratory Therapist   What is hypertonic saline (HTS)? […]

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YOUR DATA! Your Questions on Self Management

Imogene

Here are your questions on Self Management from our Survey last Spring What paperwork should I keep or throw away? […]

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