What’s new on the Cystic Fibrosis social media pages (@KnowCF)?

We are active on social media – want to know the latest news? Please follow the links to see what is new on our Cystic Fibrosis Social Media channels. Post your own comment – or just see what others are saying.

April 2017

social media feature pic jan 2017


The Wave - FB


Vertex Pharmaceuticals grant winner is seeking submissions for a website which showcases all the ways in which people with CF show their creativityFacebook Member Post

Flight attendant with CF has unique way of choosing where to travel – Facebook Member Post

An Ice Cream Fundraiser for lung transplant – Facebook Member Post


One of our Twitter members is looking for tips and tricks on adherence to PT – if you have suggestions, please let us know!

A Twitter member asks for tips and tricks about PT adherence
A Twitter member asks for tips and tricks about PT adherence




Continuous Glucose Monitor
Continuous Glucose Monitor

Photo:  Continuous Glucose Monitor 

Cayston with e-Base
Cayston with e-Base

Photo: Cayston with e-Base

Pup fell asleep with the Vest

Photo:  Pup fell asleep on Vest machine holder



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Cystic Fibrosis diet: Recipe Contest! Win one of 4 x $50 Gift Cards