What’s new on the Cystic Fibrosis social media pages (@KnowCF)?

We are active on social media – want to know the latest news? Please follow the links to see what is new on our Cystic Fibrosis Social Media channels. Post your own comment – or just see what others are saying.

March 2017

social media feature pic jan 2017


The Wave - FB


Click here to watch video#LungsforLibby 

Crossing for a Cure – an endurance paddle challenge: Facebook Member Post

Sixty Five Roses Princess BallFacebook Member Post

Vertex Pharmaceuticals grant winner is seeking submissions for a website which showcases all the ways in which people with CF show their creativity: Facebook Member Post

Aerobika Cleaning Instructions: Product Reply


#UKNeedsOrkambiTwitter MemberPost:




Where do you store your medication overflow?
Where do you store your medication overflow?

Photo: Where do you store your medication overflow?

Vest multitasking
Vest multitasking

Photo:  What do you do while doing nebs and Vest?






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Orkambi Study On Children Age 6-12 With DDF508: Cystic Fibrosis Treatment


AbbVie scholarship for students with cystic fibrosis