Privacy Policy
GENERAL
Your privacy is important to us. This privacy policy is intended to give you confidence in the privacy and security of personal information we obtain from you whether you are purchasing products (the “products”), uploading information, downloading our applications, participating in communications services or are merely visiting our website. However, please note that we are not responsible for any use of your personal information you provide to third-party applications or websites that may be accessed via the products or website. We recommend that you review the privacy policy of any third-party applications or websites that you use.
COLLECTION OF PERSONAL INFORMATION
When you use our products or website, you may be asked for personally identifiable information such as your name, location, date of birth, email address, telephone number, or genetic mutations.
By giving us such information, you will need to consent to our using it in the manner described in this policy.
You may withdraw your consent at any time by emailing us at info@cysticfibrosis.com. We will destroy your personal information within five days of receipt of your withdrawal of consent. Cookie information, pages you have requested and your IP address may also be recorded by us and/or third parties from your browser as set out in this policy.
Performance data, including performance statistics, bug fixes and other similar data (“performance data”) are uploaded to our websites or acquired through our products. Cystic Fibrosis dot com may use such performance data in any way, including, but not limited to, using, editing, altering, reproducing, publishing and/or distributing the performance data for any purpose, commercial or otherwise, provided that such performance data is stripped of all personally identifiable information.
USE OF PERSONAL INFORMATION
We use personal information to allow us to process your service requests, provide access to privileged areas of the website, to send out newsletters, personalize your visit to our websites, personalize your use of our products, and to enable us to improve the products and services we offer. We may occasionally carry out market research and send you details of services and offers that we think may be of interest to you. If you do not wish to receive such information, please e-mail info@cysticfibrosis.com or, alternatively, when we send you an e-mail, it will contain a provision for you to opt out of receiving any further information from us.
DISCLOSURE OF PERSONAL INFORMATION
We may provide information about you to our employees and agents in order to administer any accounts, products and services provided to you by Cystic Fibrosis dot com.
We will not disclose your personal information to any third party unless you have consented to such disclosure or where we are required to do so by law. Should you breach our terms and conditions or terms of use or if we are under a duty to disclose or share your personal data in order to comply with any legal obligation, we may disclose your information to a relevant authority. This may include exchanging information with other companies and organizations for the purposes of fraud protection and credit risk reduction. Any disclosure of personal information will be strictly controlled and made fully in accordance with current US law.
COOKIES
Cookies are small data files that a website you visit may save on your computer or handheld device that usually includes an anonymous unique identifier. Our website and those of our products may use cookies for user authentication, keeping track of your preferences, promotional campaigns, tracking our audience size and traffic patterns, and in certain other cases. We may include small graphic images in our email messages and newsletters to determine whether the messages were opened and the links were viewed.
Third-party advertisers may also create and access cookies, which will be subject to their privacy policies – we accept no responsibility or liability for the use of such third parties’ cookies. If you do not wish cookies to be placed on your PC or handheld device, then they can be disabled in your web browser. The option to do so is normally found in your browser’s “security settings” section. Please note that permanently disabling cookies in your browser may hinder your use of our website as well as other websites and interactive services.
SECURITY
All security on our website is treated seriously. Where applicable, we undertake security steps, including use of SSL technology, on our back-end systems that store customer account information and to protect data transmissions. However, this is not a guarantee that such data transmissions cannot be accessed, altered or deleted due to firewall or other security software failures.
If you have any further questions or concerns about security, please email our Customer Service team at info@cysticfibrosis.com.
POLICY CHANGES
Changes in this policy will be posted on our website. You are advised to check our website regularly to view our most recent privacy policy.