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New on our Cystic Fibrosis Social Media (@knowcf)

We are active on social media – want to know the latest news? Please follow the links to see what is new on our Cystic Fibrosis Social Media channels. Post your own comment – or just see what others are saying.

January 2017

social media feature pic jan 2017

Facebook:The Wave - FB

Facebook.com/KnowCF

Facebook Member Post: A member of our community asks “Anyone deal with ABPA along with cystic fibrosis? My son age 20 has been on Prednisone for a long time, recent dose is 40mg daily for the last 3 months. His FEV1 is currently 71. I notice the round face. He also deals with depression and anxiety.”

Article:  Six Things I want You to Know About Raising a Child with Cystic Fibrosis

Video: Brianna Collichio, a girl who has CF, sang at the Bills-Jets Game

Facebook.com/CFTechnology.org

Article: A post about the partnership between CFTechnology.org and Portable Genomics was featured in two news articles; one from Centerwatch: Clinical Trial Resources for Professionals and in PR Newswire.

Instagram

Instagram.com/KnowCF

Photo: Accessed port-a-cath accessed port

 

 

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1 Comment

  1. January 30, 2017 at 7:53 am

    Loved the Brianna Collichio post, what a beautiful voice and inspirational story!

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