Cystic Fibrosis genetics: Know Your CF Mutations
Source: CFF.org For the first time, drugs are available that treat the underlying cause of the disease in people with […]
Enzyme FAQs
Newly Diagnosed/Infancy The doctors want me to give the enzymes to my baby in food but he’s only a week […]
CF Patient To Climb the UK’s Three Highest Mountains in 24 Hours
Written by Leonor Mateus Ferreira Source: Cystic Fibrosis News Today Not long after his birth in 2013, Paul Siebenthal‘s son Noah was diagnosed […]
New cystic fibrosis drug has high potential, high cost
Written by Tracey Walker Source: Managed Healthcare Executive FDA’s approval of Vertex Pharmaceutical’s groundbreaking lumacaftor/ivacaftor (Orkambi) for cystic fibrosis (CF) […]
Lauren Brenneman – Hartford Hospital cystic fibrosis case study
CysticFibrosis.com welcomes Lauren Brenneman (LouLou) to the CysticFibrosis.com team. Lauren will help to carve out strategic paths as we move […]