CysticFibrosis.com supports the largest and oldest global Cystic Fibrosis community on the web, founded in 1996, comprising patients, caregivers, healthcare professionals and industry service providers

We believe in harnessing the knowledge of the patient and caregiver community to achieve participatory healthcare. Our CF community holds a wealth of knowledge on the disease, challenges they face and possible solutions they envision.

Here is what some members are saying:

“CysticFibrosis.com allows me to connect with the CF community like no other way I have ever seen. It’s easy, fun and most important I am one click away from someone who knows what I am going through” Emily, 27 w/CF

“I think it is safe to say that I learned 90% of what I know about CF from this site. I honestly don’t know where I’d be without it” Mother of 3 year old w/CF

Quick Stats:

  • Largest online CF community – 16,000 community members
  • Members in 122 countries
  • Over 1 million member posts
  • Over 1 million yearly page loads
  • Over 13,000 newsletter subscribers



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