Living With CFResearchSupport

The Importance of Treating Depression in People with Cystic Fibrosis

Depression can be a difficult subject to talk about, but it is important to be aware of the increased prevalence of depression in people with cystic fibrosis and other chronic health conditions, and to try to understand how depression, physical health, and general well-being are interrelated. In 2007, five doctors and …

Living With CFRespiratory DiseaseTechnology

Xbox Kinect to Monitor Lung Function

Researchers in the UK are developing technology for enhanced spirometry with 3-D imaging using four Microsoft Xbox Kinect devices. This technology assesses lung function and chest wall movement, and might also be useful in testing medication efficacy and changes in respiration during exercise. From the article in Forbes magazine: In …

FAQsFinancialLiving With CFSupport

Social Security Disability Benefits for people with Cystic Fibrosis

Introducing Deanna Power, the Director of Community Outreach for Social Security Disability Help. She wrote this article for our community at to help shed light on the subject of applying for disability benefits.   Applying for Disability Benefits with Cystic Fibrosis     by Deanna Power   Cystic fibrosis …

Clinical TrialsLiving With CFTreatments

In the News: Inhaled Levofloxacin & QIDP Designation

Raptor Pharmaceutical’s MP-376 (Inhaled Levofloxacin) granted QIDP Status by the FDA on March 16, 2016. What is Qualified Infectious Disease Product (QIDP) Designation? QIDP status gives a drug priority review by the FDA, eligibility for Fast Track designation, and an extension of marketing exclusivity. This incentivizes pharmaceutical companies to devote …

ExerciseLiving With CFResearch

Cystic Fibrosis: Three pilates exercises that may increase breathing strength

People with Cystic Fibrosis often suffer from air trapping and hyperinflation of their lungs. Air trapping is an abnormal retention of air. It can occur because the lungs lose elasticity and air doesn’t escape, and because mucus and inflammation obstruct exhalation. The trapped air can then cause the lungs to …

Living With CFNews & EventsResearch

Surprising Benefits from CF Research

CF Research May Help Agriculture Cystic Fibrosis is often referred to as an orphan disease i.e. research benefits a relatively small portion of the general population. But here is a serendipitous situation in which CF research may help agriculture on a large scale. A graduate student at the University of …

Alternative MedicineGastrointestinal DiseaseLiving With CFNutrition

What is an Anti-Inflammatory Diet?

From left to right: onion, ginger, garlic, fresh turmeric Anti-inflammatory foods are often discussed by people with chronic inflammatory diseases. Cystic Fibrosis has associated inflammatory responses, which brings the question of how beneficial an anti-inflammatory diet could be as part of the Cystic Fibrosis diet? What foods are helpful? What studies are behind …

Alternative Medicinefeatured_memberLiving With CFResearch

Sharktank: Jim Caldwell

My name is Jim Caldwell and I would like to introduce myself to this group. I am the president of another cystic fibrosis group called Sharktank Research Foundation ( I’ve been involved with Sharktank since 1999. I began studying cystic fibrosis seventeen years ago through Sharktank, shortly after my daughter was …

GeneticsLiving With CFResearchTreatments

Trial results of Ivacaftor in Cystic Fibrosis children ages 2-5

Results are out from a two part study involving children ages 2-5 with at least one gating mutation trying Ivacaftor (a medication used in Cystic Fibrosis treatment) From the Lancet Respiratory Journal, 20 January 2016 Ivacaftor has been shown to be a safe, effective treatment for cystic fibrosis in patients …

GeneticsLiving With CFResearchVideo

Genome editing with CRISPR-Cas9

This video explains how research in genome editing may help treat genetic diseases like CF in the future.