Jillian needs a kidney! Type O
Meet Jillian McNultey, our latest Team Member! Jillian NEEDS a KIDNEY! Listen Here: THANK YOU to all those who like […]
Large Scale CF survey on Personal Health and Wellness
The Cystic Fibrosis (CF) community is ripe for a new model of patient engagement in research, with medical data collection […]
Roche Virtual Summit Lauren Brenneman speaks Innovation and the CF community
Lauren Brenneman of CFTEchnology speaks about the mission of patients to take charge of their data at the Roche Virtual Summit Patient Panel
Tips on Taking Care of Your Lungs with COVID-19 (from a successful Cystic Fibrosis patient)
The cystic fibrosis community is at high risk for serious complications from COVID-19. Through a recent survey of the online […]
CFTechnology and CreativeDestructionLab
Discovery, Research, and the Economics of Human Data OUR REQUEST: As supporters of our community, we are reaching out to […]
Suggestions to Help You Manage Cystic Fibrosis at College
Congratulations, you were accepted at the college of your choice and you’re getting ready for the next major transition in […]
Imogene attends: Deep Tech Pharma Philadelphia April 10, 2019
Memories of my great day in Philly, April 10, 2019 at the Ieee.org Deep Tech Pharma, Philadelphia. As I sit […]
Technology’s Place in the Lives of Patients with Cystic Fibrosis
Copyright © 2019 NetNoggin, LLC. All Rights Reserved. Technology’s Place in the Lives of Patients with Cystic Fibrosis Newcomer M1, […]
Gratitude: came in my inmail!
We all can reach back in our memories and think of something or someone who made a difference and just […]
Going Back to School with Cystic Fibrosis (from our Archives)
Monday, August 25, 2008 written by Lauren Beyenhoff based on a survey at Cysticfibrosis.com FreePics CF Goes Back to School […]