Jillian needs a kidney! Type O
Meet Jillian McNultey, our latest Team Member! Jillian NEEDS a KIDNEY! Listen Here: THANK YOU to all those who like former team member Dr. Corey Nislow, Gave the Gift of Life and DONATED a KIDNEY Listen here for Corey’s Story: http://https://youtu.be/j_c5p_VdRiY And to those researchers at Langone Hospital in NYC …
Large Scale CF survey on Personal Health and Wellness
The Cystic Fibrosis (CF) community is ripe for a new model of patient engagement in research, with medical data collection and sharing, through new technologies that ensure privacy and allow for patient compensation. [1]The CF community is one of the most unified patient and patient advocate groups, with decades of …
Roche Virtual Summit Lauren Brenneman speaks Innovation and the CF community
Lauren Brenneman of CFTEchnology speaks about the mission of patients to take charge of their data at the Roche Virtual Summit Patient Panel
Tips on Taking Care of Your Lungs with COVID-19 (from a successful Cystic Fibrosis patient)
The cystic fibrosis community is at high risk for serious complications from COVID-19. Through a recent survey of the online patient and caregiver CysticFibrosis.com community (200+ participants) conducted by the non-profit CFTechnology.org, we discovered that CF patients are faring quite well at home. This is in great part because they …
CFTechnology and CreativeDestructionLab
Discovery, Research, and the Economics of Human Data OUR REQUEST: As supporters of our community, we are reaching out to you. CFTechnology.org is at a tipping point- we are poised to become members of the Creative Destruction Labs 2020 cohort and are asking for letters of support for this next, …
Suggestions to Help You Manage Cystic Fibrosis at College
Congratulations, you were accepted at the college of your choice and you’re getting ready for the next major transition in your life. This is a highly exciting time when you’ll be embarking on new adventures, meeting new people, and learning a lot about the world and yourself. But it’s normal …
Imogene attends: Deep Tech Pharma Philadelphia April 10, 2019
Memories of my great day in Philly, April 10, 2019 at the Ieee.org Deep Tech Pharma, Philadelphia. As I sit here with business cards in front of me, I am remembering my time exploring Deep Tech pharma, with some old and new friends. Firstly, many of you know that my …
Technology’s Place in the Lives of Patients with Cystic Fibrosis
Copyright © 2019 NetNoggin, LLC. All Rights Reserved. Technology’s Place in the Lives of Patients with Cystic Fibrosis Newcomer M1, Conger D1, Rudnick C1, Noland D1 Authors Information: 1. NetNoggin, LLC, Frederick, MD USA email: info@netnoggin.netTechnology and Cystic Fibrosis Big data is telling us that despite cystic fibrosis (CF) being …
Gratitude: came in my inmail!
We all can reach back in our memories and think of something or someone who made a difference and just quietly “give thanks”. Blake (Lance2020) actually took the time many years later to thank us at CFTechnology.org for the gift of a flip camera, this was a digital camera before …
Going Back to School with Cystic Fibrosis (from our Archives)
Monday, August 25, 2008 written by Lauren Beyenhoff based on a survey at Cysticfibrosis.com FreePics CF Goes Back to School Sharpened pencils, new backpacks and notebooks; ‘Tis the season for heading back to school. Sending a child off to school for the first time can be an emotionally charged event. …