My Journey with Cystic Fibrosis: Overcoming Obstacles and Embracing Self-Care – by Zain Arif
Life-Changing News Hello there! I’m Zain Arif, a 19-year-old who’s been living with Cystic Fibrosis (CF) since I was just […]
Parenting with Cystic Fibrosis – by Megan Mancuso
Deciding to Get Pregnant The choice to have children is filled with uncertainty. What if my baby is born with […]
Life is Good! – by Kevin Munroe, 65 years young
*Note from the editor: Meet Kevin, a 65-year old “Grampy” with Cystic Fibrosis! My first thought was: I bet he […]
Leaving a Legacy That Lasts – by Jessica McDearman
As a young child, I dreamed of one day having a little girl to call my own. I practiced swaddling […]
All in God’s timing – by Ashton Barton
Hello, my name is Ashton Barton. I’m 35 years old, wife to a good Godly man, and a mom to […]
Living For Longevity – by Ashley Wilson
“If you have the aspiration of kicking ass when you’re 85, you can’t afford to be average when you’re 50.” […]
Emotional Regulation & Resilience Living with CF – By Tina Clarke
Emotional regulation is defined as being able to “control” our emotions so that they stay within a manageable range of […]
Patients and advocacy groups take legal action against Trikafta patents in four countries
Activists are pressing governments in low- and middle-income countries to open up access to generic, more affordable versions of Trikafta/Kaftrio. […]
Long COVID Breathlessness
– By Aoife Rafter I was doing so well, isolating and laying low the past 2 years when COVID cases […]
Why I Don’t Remember or Celebrate the Date of my Double Lung Transplant
– By Tina Clarke Most people with CF who have received a double lung transplant know the date nearly as […]