Living With CFTransplants

No Longer 18 Years – By Ashley Wilson

“She might make it to 18 years old if she is lucky.” “She might make it to 18 years old if she is lucky.”  This is what the doctor told my parents after finally receiving a diagnosis for my failure to thrive as a baby. At 6 months old I …

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Living With CFTreatments

It’s a Marathon Not a Sprint – by Nicholas Breton

Approximately 10 years ago, my mother had called me on the phone frantically telling me she had seen a news blurb about a cure for Cystic Fibrosis being found.  She is so hopeful of that day that she is more believing in news articles regardless of the misrepresentations that the …

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Alternative MedicineLiving With CF

Acupuncture for Cystic Fibrosis

What is Acupuncture? Acupuncture derives from traditional Chinese medicine and has been practiced for over 5000 years. It involves inserting very thin needles through the skin at different key points on the body. These needles are about the thickness of a human hair, so they don’t hurt when inserted, (they …

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Alternative MedicineLiving With CF

Reflexology for Cystic Fibrosis

Where My Interest in Reflexology Stemmed From As I have mentioned in previous blog posts, it was only at the age of 27 through oncology recovery, that I first started experimenting with complementary therapies. Once I tried them I became hooked! Nothing had ever helped me so much with my …

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AdvocacyAlternative MedicineLiving With CF

Surviving Through the Pandemic Isolation in Ireland with CF

Saying Good-Bye to One Emotional Roller-coaster… January 2019. Fatigued, emotional, drained, fragile but eternally grateful, I was ready to take life by the horns as I had just finished 25 sessions of radiotherapy. It had been an extremely tough 10 months, having to leave my new home, job and friends …

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Alternative MedicineLiving With CFTreatments

How Breathwork Can Help Cystic Fibrosis

Deprived of a Beneficial Therapy? Although I’ve been in and out of hospitals since my diagnosis of Cystic Fibrosis at 9 years of age, I have never had a CF specialist of any kind teach me the basics on how to breathe correctly or optimally. This sounds a bit bizarre …

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Living With CFNutrition

Food, Glorious Food! – by Sarah Leigh Milczanowski

A LITTLE BIT ABOUT ME Hi all readers, I am Sarah. I’m 34 years old, I live in the UK and I have Cystic Fibrosis. The topics below are issues I have faced myself, sought help with and overcame so I wish to try and help others I really do …

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Living With CF

My Top Tips for Sleepless Nights with Cystic Fibrosis – by Aoife P. Rafter

I’m sure many of you are aware of the importance of sleep in order for the body to recover from illness and reach a point of homeostasis – when all the systems of the body are balanced and can work together. But unfortunately, having CF can often come in hand …

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Uncategorized

How to manage teenage years with Cystic Fibrosis – Cerys Upstone

Teenage years – ‘The best years of your life!’ they say. Finding independence, taking on new responsibilities, making friends, partying, studying. Teens are desperate to blend in, with huge peer pressure. There’s a lot to balance at the best of times, but learning to navigate this unfamiliar path when also …

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Living With CF

Introducing Alison Smith – founder of Cystic Fibrosis Mummies

My name is Alison. I am 38, I am married to Adam and we live in Northamptonshire, Uk,  in a house we own. We have a daughter, Harriet, who is 12 years old and we have two cocker spaniels and a cat. Very normal. Very ‘average’. If you were to peek …

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