New project with Vaultt
We want to introduce you to an exciting new project we have launched at CysticFibrosis.com. After years of effort, we are […]
CFTechnology and CreativeDestructionLab
Discovery, Research, and the Economics of Human Data OUR REQUEST: As supporters of our community, we are reaching out to […]
Imogene attends: Deep Tech Pharma Philadelphia April 10, 2019
Memories of my great day in Philly, April 10, 2019 at the Ieee.org Deep Tech Pharma, Philadelphia. As I sit […]
Technology’s Place in the Lives of Patients with Cystic Fibrosis
Copyright © 2019 NetNoggin, LLC. All Rights Reserved. Technology’s Place in the Lives of Patients with Cystic Fibrosis Newcomer M1, […]
Welcome to CFTechnology.org video
We have a new introductory video about CFTechnology.org. Thank you to the talented Blake (with CF) for the fantastic job […]
A New Model for Patient Engagement for Cystic Fibrosis Patients and Caregivers
Our blog appears in the DIA global forum. It has the results of our initial survey (which took place from […]
CURE-E-US: Our CF community has an UNMET NEED (Part 3)
The survey: “Discovery, Research, and Profit” has ended and I have presented at the World Orphan Drug Congress in Maryland. I […]