Alternative MedicineLiving With CF

Anxiety in CF: Can CBD oil help?

Most CF patients experience anxiety about their health. Anxiety and depression may be increased by ingestion of many common CF drugs and therapies (1,2). Is it possible that CBD oil could help with anxiety? Cannabidiols (CBD) are reported in the literature(3,4) and on social media to help alleviate anxiety as …

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Living With CFRespiratory DiseaseSupplements

TauriNAC Now Available

This summer, Sharktank Research Foundation and Planetary Biosciences released a product called TauriNAC. It contains NAC (N-Acetylcysteine), taurine, magnesium, green tea extract, vitamin C, and some other things. A study from Stanford University has shown that NAC helps lung function in CF patients. We designed TauriNAC with several objectives. We wanted …

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Alternative MedicineNutritionResearchUncategorized

Personal Indrepta Results

I wanted to report the latest news we are seeing with my daughter using Indrepta. She is 19 years old and is DDF508. She is home for the summer and has been away the last year at university.  She has had to maintain her CF regimen by herself. Over the …

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Living With CFNutritionSupplements

Indrepta C Lottery Winners

Planetary Biosciences is holding a Give Away Lottery on the cysticfibrosis.com group, for 7 people receiving one bottle of Indrepta C, to celebrate the release of this new product.  If you want to be part of this lottery, please send an email to contactus@planetarybiosciences.com with the Subject: Indrepta Lottery.  Please read …

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Living With CFNutritionSupplements

Indrepta C now available for nonsense mutations

Sharktank Research Foundation releases Indrepta C; a nutritional supplement targeted for nonsense mutations Sharktank Research Foundation announces promising news for CF patients with ‘X’ or nonsense mutations, which cause a premature stop codon. The CFTR nonsense mutation W1282X is shown to be activated by a natural dietary supplement, curcumin.1 Recently, …

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ContestsLiving With CFTreatments

Wabi Baby Steam Sterilizer Contest

Photography Contest for Cystic Fibrosis Awareness MonthEnter to Win! Take a photograph of your system for cleaning CF respiratory or feeding tube equipment and enter to win a Wabi Baby Steam Sterilizer & Dryer – the only commercial steam sterilizer to be tested on CF pathogens. Cleaning nebulizer parts is an important part …

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