Trial results of Ivacaftor in Cystic Fibrosis children ages 2-5

Melissa75

Results are out from a two part study involving children ages 2-5 with at least one gating mutation trying Ivacaftor […]

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Genome editing with CRISPR-Cas9

Melissa75

This video explains how research in genome editing may help treat genetic diseases like CF in the future.

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Newly Diagnosed: What is Cystic Fibrosis

Aboveallislove

What is Cystic Fibrosis and how are genetics involved? This article shares some helpful information if you are newly diagnosed. […]

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Cystic Fibrosis testing: Genetic testing and sweat test

lightNlife

Written by LightNLife and Ambry Genetics updated by Melissa75   How many different CF mutations are there? More than 2000 […]

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A Conversation on Filing Taxes with Cystic Fibrosis

Melissa75

CF Tax Deductions Often people with Cystic Fibrosis and families with children with Cystic Fibrosis are not aware of the […]

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Cystic Fibrosis Resource and Information Needs Survey

Melissa75

Written by Melissa75 and Imogene In the Spring of 2015, we surveyed the CF community on resource and information needs. […]

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Parenting Tips

Melissa75

Lisa Greene is a writer, educator and mother of two children with CF. She and child psychiatrist Dr. Foster Cline […]

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Cystic Fibrosis symptoms: Asthma, Allergies & Green FAQ

Nightwriter

Written by member Nightwriter Please note that this information was compiled from numerous threads on the message boards relating to […]

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Ten Hurdles to Cystic Fibrosis Patient Adherence

Melissa75

By Jeanne Barnett on Jun 4, 2012 (source: EyeforPharma Blog) There are many factors which can influence the level of […]

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Personal Spirometry and the Cystic Fibrosis Patient

Melissa75

Written by Jeanne Barnett As a moderator/founder of a vibrant online social health community: cysticfibrosis.com, I can attest to hundreds […]

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