Trial results of Ivacaftor in Cystic Fibrosis children ages 2-5
Results are out from a two part study involving children ages 2-5 with at least one gating mutation trying Ivacaftor […]
Genome editing with CRISPR-Cas9
This video explains how research in genome editing may help treat genetic diseases like CF in the future.
Newly Diagnosed: What is Cystic Fibrosis
What is Cystic Fibrosis and how are genetics involved? This article shares some helpful information if you are newly diagnosed. […]
Cystic Fibrosis testing: Genetic testing and sweat test
Written by LightNLife and Ambry Genetics updated by Melissa75 How many different CF mutations are there? More than 2000 […]
A Conversation on Filing Taxes with Cystic Fibrosis
CF Tax Deductions Often people with Cystic Fibrosis and families with children with Cystic Fibrosis are not aware of the […]
Cystic Fibrosis Resource and Information Needs Survey
Written by Melissa75 and Imogene In the Spring of 2015, we surveyed the CF community on resource and information needs. […]
Parenting Tips
Lisa Greene is a writer, educator and mother of two children with CF. She and child psychiatrist Dr. Foster Cline […]
Cystic Fibrosis symptoms: Asthma, Allergies & Green FAQ
Written by member Nightwriter Please note that this information was compiled from numerous threads on the message boards relating to […]
Ten Hurdles to Cystic Fibrosis Patient Adherence
By Jeanne Barnett on Jun 4, 2012 (source: EyeforPharma Blog) There are many factors which can influence the level of […]
Personal Spirometry and the Cystic Fibrosis Patient
Written by Jeanne Barnett As a moderator/founder of a vibrant online social health community: cysticfibrosis.com, I can attest to hundreds […]