Your Cystic Fibrosis Data is Valuable! Watch the Video…Take the Survey!
We hope you agree! Tell us what you think..Be Counted! Take the SURVEY NOW! Video by Lance 2020 ~ 1 […]
Webinar: Infection Prevention During Bronchoscopy
Laurence Muscarella Ph.D. and Atul Mehta M.D. A detailed webinar (71:30 minutes) can be viewed online. Highlights: The latest research […]
Rare Disease Patient Advocacy Summit
Later this week, Jeanne Barnett will be attending the fifth annual RARE Patient Advocacy Summit run by Global Genes in […]
The Science of Character
The Science of Character (8 mins) explores the neuroscience and social science that proves that we can shape who we are, and […]
Documentary: Sisters living with Cystic Fibrosis
Olivia Shivas from Attitude Pictures in New Zealand wrote to cysticfibrosis.com about a documentary series her organization has created that […]
It’s Been a Good Life Dad: My Son’s Struggle with Cystic Fibrosis
It’s Been a Good Life Dad: My Son’s Struggle with Cystic Fibrosis by Jerry E. Hendon Author Jerry Hendon writes: […]
Toddler Bubby, taking enzymes for Cystic Fibrosis treatment
80%-90% of people with Cystic Fibrosis need to take enzyme capsules before they eat, as part of their Cystic Fibrosis […]
Genome editing with CRISPR-Cas9
This video explains how research in genome editing may help treat genetic diseases like CF in the future.
Lauren Brenneman – Hartford Hospital cystic fibrosis case study
CysticFibrosis.com welcomes Lauren Brenneman (LouLou) to the CysticFibrosis.com team. Lauren will help to carve out strategic paths as we move […]