Treatment for Cystic Fibrosis: Vertex Acquires Concert’s CFTR Potentiator CTP-656

Melissa75

Vertex Pharmaceuticals recently purchased the Phase 2 cystic fibrosis potentiator drug CTP-656 from Concert Pharmaceuticals. The deal is estimated to […]

Read More

Mom takes on Vertex CEO about pricey Cystic Fibrosis Treatment Drugs

Imogene

In October, Oklahoma-based journalist and mom Juliana Keeping traveled to Boston with her son to confront Jeffrey Leiden, the CEO of […]

Read More

Individual Counseling Offered

Imogene

jricci brings us this great news: Through a very generous contribution Financial Support for Individual Counseling Services are being offered […]

Read More

We Lobby

Imogene

A Brief History of Our Lobbying Efforts in 2015   In April, 2015, we sent this letter to the FDA […]

Read More

Trial results of Ivacaftor in Cystic Fibrosis children ages 2-5

Melissa75

Results are out from a two part study involving children ages 2-5 with at least one gating mutation trying Ivacaftor […]

Read More