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Roche Virtual Summit Lauren Brenneman speaks Innovation and the CF community

Lauren Brenneman of CFTEchnology speaks about the mission of patients to take charge of their data at the Roche Virtual Summit Patient Panel

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Tips on Taking Care of Your Lungs with COVID-19 (from a successful Cystic Fibrosis patient)

The cystic fibrosis community is at high risk for serious complications from COVID-19. Through a recent survey of the online patient and caregiver CysticFibrosis.com community (200+ participants)  conducted by the non-profit CFTechnology.org, we discovered that CF patients are faring quite well at home. This is in great part because they …

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CFTechnology and CreativeDestructionLab

Discovery, Research, and the Economics of Human Data OUR REQUEST: As supporters of our community, we are reaching out to you. CFTechnology.org is at a tipping point- we are poised to become members of the Creative Destruction Labs 2020 cohort and are asking for letters of support for this next, …

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Living With CF

Suggestions to Help You Manage Cystic Fibrosis at College

Congratulations, you were accepted at the college of your choice and you’re getting ready for the next major transition in your life. This is a highly exciting time when you’ll be embarking on new adventures, meeting new people, and learning a lot about the world and yourself. But it’s normal …

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Imogene attends: Deep Tech Pharma Philadelphia April 10, 2019

Memories of my great day in Philly, April 10, 2019 at the Ieee.org Deep Tech Pharma, Philadelphia. As I sit here with business cards in front of me, I am remembering my time exploring Deep Tech pharma, with some old and new friends. Firstly, many of you know that my …

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Technology’s Place in the Lives of Patients with Cystic Fibrosis

Copyright © 2019 NetNoggin, LLC. All Rights Reserved. Technology’s Place in the Lives of Patients with Cystic Fibrosis Newcomer M1, Conger D1, Rudnick C1, Noland D1 Authors Information: 1. NetNoggin, LLC, Frederick, MD USA email: [email protected] and Cystic Fibrosis Big data is telling us that despite cystic fibrosis (CF) being …

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Gratitude: came in my inmail!

We all can reach back in our memories and think of something or someone who made a difference and just quietly “give thanks”. Blake (Lance2020) actually took the time many years later to thank us at CFTechnology.org for the gift of a flip camera, this was a digital camera before …

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Living With CF

Going Back to School with Cystic Fibrosis (from our Archives)

Monday, August 25, 2008 written by Lauren Beyenhoff based on a survey at Cysticfibrosis.com FreePics CF Goes Back to School Sharpened pencils, new backpacks and notebooks; ‘Tis the season for heading back to school. Sending a child off to school for the first time can be an emotionally charged event. …

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Why Cystic Fibrosis and Blockchain? by LittleLab4CF

LittleLab4CF  David Orthman, PhD How can BlockChain facilitate Pharmaceutical companies go-to-market strategy? The greatest barrier to doing business is inertia. The red tape will stop or stall any new commerce. BlockChain can offer the simplest path from product to payment and delivery. First and foremost, Pharmaceutical companies eschew re-inventing wheels. …

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FinancialGeneticsLiving With CF

LittleLab4CF (our own Geneticist with Cystic Fibrosis) Helps us Understand Pharma/Patients and Blockchain

How can the data-sharing capabilities of BlockChain lead to lower development costs and increased efficiency? BlockChain can be compared to a suite of software utilities like Microsoft’s Office package. Office software and similar products have a word processor, spread sheet, product promotion and business presentation applications like PowerPoint that are …

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