T alpha 1
Clinical TrialsLiving With CFNews & EventsRespiratory Disease

New drug (Thymosin alpha 1) discovery: potential for Cystic Fibrosis treatment

According to an article published on www.sciencedaily.com, researchers have discovered a potential new drug to treat and stop the progression of cystic fibrosis. While many other promising drugs are in the pipeline, we here at cysticfibrosis.com will be keeping a keen eye on further developments of this medication. Read the …

READ MORE →
AbbVie
FinancialLiving With CFSupport

AbbVie scholarship for students with cystic fibrosis

Thanks to 25-years of medical advancement, the goal of pursuing higher education for many students with cystic fibrosis, an inherited chronic disease that affects the lungs and digestive system, is more achievable than ever before. AbbVie announced the opening of the application period for the AbbVie CF Scholarship program, marking …

READ MORE →
amazon
Living With CFUncategorized

Cystic Fibrosis fundraiser: Support us through AmazonSmile at no additional cost to you

Did you know that cftechnology.org is registered with AmazonSmile?   An easy way to support a Cystic Fibrosis fundraiser! AmazonSmile is a simple and automatic way for you to support CFtechnology.org (our registered charitable organization) every time you shop, at no cost to you. If you purchase something on AmazonSmile, Amazon donates 0.5% …

READ MORE →
Foam roller blog
Exercisefeatured_memberLiving With CF

Cystic Fibrosis treatment: Foam roller benefits – a member blog

I recently received some questions about foam rolling, as a result of a personal blog Top remedies or tools for CF related ailments, which listed foam rolling as one of my favourite CF remedies. Questions such as “What is a foam roller?” and “How does one use it?” – Here is a bit more …

READ MORE →
Miracle_Flights4
FinancialLiving With CFSupportTransplantsTreatments

Miracle Flights: free medically-related air travel for ill patients, including for Cystic Fibrosis treatment

Struggling to cover the cost of air travel to receive your medical care? Miracle Flights assists patients through free commercial air travel to obtain special medical care. Read more about this fantastic organization and how to apply below…   Blog article written in conjunction with Brooke Freeman, Community Outreach Officer …

READ MORE →
honey
Alternative MedicineLiving With CFNutrition

Potential benefits of honey in Cystic Fibrosis Treatment

  Honey has been used for centuries as a food and sweetener but also for its healing properties. Early uses of honey has been noted in ancient civilisations, in countries such as Egypt, Greece, China and Spain. Honey continues to be a popular food today, and a natural product that is widely used for …

READ MORE →
artificial_pancreas2
Living With CFTechnologyTreatments

(Cystic Fibrosis Diabetes) First FDA approved artificial pancreas and other 2016 Digital health highlights

The “What We Learnt in Digital Health in 2016” article (by Bertalan Meskó, MD, PhD) takes a look at the successes, failures and challenges in the field of digital health in 2016 and provides an interesting view on some current trends. The first FDA-approved artificial pancreas is mentioned (which may be of interest …

READ MORE →
Gel Caps
Living With CFResearch

Vitamin D Supplements May Help Improve Lung Function in Cystic Fibrosis

This interesting pilot study examined the impact of vitamin D on Cystic Fibrosis patients’ lung function. In addition to the known importance of adequate Vitamin D on bone health, Vitamin D may play an important role in lung function, due to its effects on the immune system. The study also …

READ MORE →
orkambi_logo
Living With CFNews & Events

ORKAMBI® (Lumacaftor/Ivacaftor) latest news: Germany, Australia availability

ORKAMBI® reimbursement agreement reached for Germany – December 19, 2016 Vertex Announces German Reimbursement Agreement for ORKAMBI® (Lumacaftor/Ivacaftor), the First Medicine to Treat the Underlying Cause of Cystic Fibrosis in People Ages 12 and Older with Two Copies of the F508del Mutation –(BUSINESS WIRE)–Vertex Pharmaceuticals Incorporated (Nasdaq:VRTX) today announced it has …

READ MORE →
stylecomfy_redbubble_products_storm_white
featured_memberLiving With CFSupport

Member post: goals and managing expectations with Cystic Fibrosis

A little story: When I was 12, I participated in a big folk dancing competition through my school. It consisted of several hundred participants and we danced non-stop for hours in front of a selection panel. An elite group of dancers would be chosen to go on a week-long vacation …

READ MORE →