My Journey with Cystic Fibrosis: Overcoming Obstacles and Embracing Self-Care – by Zain Arif

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Life-Changing News Hello there! I’m Zain Arif, a 19-year-old who’s been living with Cystic Fibrosis (CF) since I was just […]

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Parenting with Cystic Fibrosis – by Megan Mancuso

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Deciding to Get Pregnant The choice to have children is filled with uncertainty. What if my baby is born with […]

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Life is Good! – by Kevin Munroe, 65 years young

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*Note from the editor: Meet Kevin, a 65-year old “Grampy” with Cystic Fibrosis! My first thought was: I bet he […]

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Leaving a Legacy That Lasts – by Jessica McDearman

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As a young child, I dreamed of one day having a little girl to call my own. I practiced swaddling […]

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All in God’s timing – by Ashton Barton

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Hello, my name is Ashton Barton. I’m 35 years old, wife to a good Godly man, and a mom to […]

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Living For Longevity – by Ashley Wilson

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“If you have the aspiration of kicking ass when you’re 85, you can’t afford to be average when you’re 50.” […]

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Emotional Regulation & Resilience Living with CF – By Tina Clarke

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Emotional regulation is defined as being able to “control” our emotions so that they stay within a manageable range of […]

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Patients and advocacy groups take legal action against Trikafta patents in four countries

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Activists are pressing governments in low- and middle-income countries to open up access to generic, more affordable versions of Trikafta/Kaftrio. […]

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Long COVID Breathlessness

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– By Aoife Rafter I was doing so well, isolating and laying low the past 2 years when COVID cases […]

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Why I Don’t Remember or Celebrate the Date of my Double Lung Transplant

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– By Tina Clarke Most people with CF who have received a double lung transplant know the date nearly as […]

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