WelcometoCFTechnology
APP for CFLiving With CF

Welcome to CFTechnology.org video

We have a new introductory video about CFTechnology.org. Thank you to the talented Blake (with CF) for the fantastic job on the creation of this animated video. If you like this video, please like and share, as we are still trying to attract the right funding and partners to make …

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FinancialLiving With CFResourcesSupport

SSDI for people with Cystic Fibrosis

Does Cystic Fibrosis Qualify as a Disability for SSDI? Learn more about SSDI and Cystic Fibrosis. Article written by Danielle Roberts, a Medicare insurance expert. You can learn more about her and her team at https://boomerbenefits.com. *** About 30,000 people have cystic fibrosis in the U.S., according to the Cystic Fibrosis Foundation. As …

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Medicare_CF
Living With CFResources

Medicare and Cystic Fibrosis

Learn more about how Medicare covers Cystic Fibrosis. Article written by Danielle K Roberts, a Medicare insurance expert at Boomer Benefits, where she and her team help educate consumers about Medicare works. *** Dealing with health insurance is complicated when you have a chronic disorder like cystic fibrosis—and Medicare can be even more …

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Lungs
Living With CFResourcesTransplants

Does Medicare Cover Lung Transplants?

Learn more about how the various parts of Medicare pay for treatment before, during and after a Lung Transplant. Article written by Danielle K Roberts, co-founder at Boomer Benefits, a licensed insurance agency that helps baby boomers navigate Medicare in 47 states. *** Lung transplants are complex surgical procedures which can …

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FinancialLiving With CFResources

ENF Scholarship and CF summer research program applications now open

  Applications for the Elizabeth Nash Foundation scholarship and summer CF research programs are now available. Please find relevant information below. Scholarship program The Elizabeth Nash Foundation awards scholarships to assist persons with CF to pursue undergraduate and graduate degrees. Grants range from $1,000 to $2,500 and are made directly to …

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GeneticsResearchRespiratory Disease

Stem cell transplants for lung regeneration – promising breakthrough in China

For the first time, researchers have succeeded in using stem cell transplantation to regenerate damaged lung tissue It has been reported earlier this week, that researchers from Tongji University in China have made a breakthrough in human lung regeneration technology which could greatly benefit patients with permanent lung damage such as bronchiectasis. (Since …

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featured_memberGeneticsLiving With CF

LittleLab4CF on the potential of an enormously valuable Genomic Diary

This blog was reproduced from a post by LittleLab4CF , a Super Moderator on the cysticfibrosis.com forum.  “I found myself in a lively discussion with one of my doctor’s about the business of Genomics and what they really want. Dr. “Nancy” was remarking that she’d completed her Christmas shopping, buying 23&Me for pretty much …

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AdheranceLiving With CFTreatments

DIY nebulizer sterilizer hack for Cystic Fibrosis treatments (member story)

**Note: this is not medical advice and this method has not been approved by any medical professionals or suppliers. It is just a workaround method used by someone with CF. It should only be tried on nebulizer parts that can be boiled** My DIY nebulizer sterilizer hack I have a confession: …

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Living With CF

Fashion tips and favorite products for my Cystic Fibrosis body

With CF, unexpected body changes can make getting dressed in the morning a frustrating experience. Exhibit A: What size will I be in the morning? Although your friends may remark that they too would ‘love to eat anything and not gain weight’, or declare that if they had ‘your figure …

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AdvocacyGeneticsLiving With CFResearch

A letter from Dr Corey Nislow – the obligation to change the way research is done

Dear CF community, My name is Corey Nislow, I am a 51-year-old academic researcher who has spent the last 30 years studying how genes affect traits. For a bit of my background you can find me here: www.creativedestructionlab.com/people/corey-nislow/ and here scholar.google.ca/citations?user=n1e6LlcAAAAJ&hl=en . My reason for writing is simple. Just over a …

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