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FinancialLiving With CFResources

ENF Scholarship and CF summer research program applications now open

  Applications for the Elizabeth Nash Foundation scholarship and summer CF research programs are now available. Please find relevant information below. Scholarship program The Elizabeth Nash Foundation awards scholarships to assist persons with CF to pursue undergraduate and graduate degrees. Grants range from $1,000 to $2,500 and are made directly to …

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GeneticsResearchRespiratory Disease

Stem cell transplants for lung regeneration – promising breakthrough in China

For the first time, researchers have succeeded in using stem cell transplantation to regenerate damaged lung tissue It has been reported earlier this week, that researchers from Tongji University in China have made a breakthrough in human lung regeneration technology which could greatly benefit patients with permanent lung damage such as bronchiectasis. (Since …

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featured_memberGeneticsLiving With CF

LittleLab4CF on the potential of an enormously valuable Genomic Diary

This blog was reproduced from a post by LittleLab4CF , a Super Moderator on the cysticfibrosis.com forum.  “I found myself in a lively discussion with one of my doctor’s about the business of Genomics and what they really want. Dr. “Nancy” was remarking that she’d completed her Christmas shopping, buying 23&Me for pretty much …

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AdheranceLiving With CFTreatments

DIY nebulizer sterilizer hack for Cystic Fibrosis treatments (member story)

**Note: this is not medical advice and this method has not been approved by any medical professionals or suppliers. It is just a workaround method used by someone with CF. It should only be tried on nebulizer parts that can be boiled** My DIY nebulizer sterilizer hack I have a confession: …

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Living With CF

Fashion tips and favorite products for my Cystic Fibrosis body

With CF, unexpected body changes can make getting dressed in the morning a frustrating experience. Exhibit A: What size will I be in the morning? Although your friends may remark that they too would ‘love to eat anything and not gain weight’, or declare that if they had ‘your figure …

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AdvocacyGeneticsLiving With CFResearch

A letter from Dr Corey Nislow – the obligation to change the way research is done

Dear CF community, My name is Corey Nislow, I am a 51-year-old academic researcher who has spent the last 30 years studying how genes affect traits. For a bit of my background you can find me here: www.creativedestructionlab.com/people/corey-nislow/ and here scholar.google.ca/citations?user=n1e6LlcAAAAJ&hl=en . My reason for writing is simple. Just over a …

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AdheranceLiving With CF

A Conversation with Gunnar Esiason

Gunnar Esiason is the son of retired American NFL quarterback, Norman (Boomer) Esiason. He is twenty-six years old and living with cystic fibrosis. He is currently the director of the patient advocate program at the Boomer Esiason Foundation in Garden City, New York. Their mission is to heighten awareness, education …

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Advocacyfeatured_memberSupport

The Unidos pela Vida Institute – spreading knowledge about Cystic Fibrosis in Brazil

Join us today as we learn more about the Unidos pela Vida Institute for Cystic Fibrosis in Brazil. Thank you to Verônica Stasiak and Pamela Mazini Stürmer for supplying us with the below information, translated to English. We wish them good luck with the great work they are doing to spread awareness …

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Living With CF

What is Cystic Fibrosis – Infographic

What is Cystic Fibrosis? View this handy infographic which explains, in a summarized format, what Cystic Fibrosis is, including symptoms, genetics, diagnosis and treatment. Feel free to share this infographic and at the bottom of the page, you will find a handy printable version of ‘What is Cystic Fibrosis’ (adapted to letter-sized …

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CF Recipes

Enchilada Casserole Anti-inflammatory Recipe (Cystic Fibrosis diet)

Recipe submitted by Ashlee Print Recipe Enchilada Casserole Anti-inflammatory Recipe (Cystic Fibrosis diet) Servings Ingredients 3 cups tomato sauce or salsa16 corn tortillas6 green onions sliced2 lbs ground turkey or beef3 cups shredded mozzarella cheese (whole milk) 1 avacado diced1 Tbs cilantro2 Tbs turmeric 2 Tbs cumin1 Tbs sea salt …

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