Image by Evgenios Metaxas MD MSc, Pulmonologist http://creativecommons.org/licenses/by-sa/3.0

Home Monitoring vs. Traditional Care in CF: Year-Long Study Results

A study of home monitoring vs. traditional cystic fibrosis care in 267 patients age fourteen and older showed that after a year, FEV1 decline is similar in both models, though exacerbations are detected earlier in the home monitoring group. Home monitoring consisted of twice weekly electronic logging of spirometry and …

READ MORE →
slide2_02

What is Cystic Fibrosis – Infographic

What is Cystic Fibrosis? View this handy infographic which explains, in a summarized format, what Cystic Fibrosis is, including symptoms, genetics, diagnosis and treatment. Feel free to share this infographic and at the bottom of the page, you will find a handy printable version of ‘What is Cystic Fibrosis’ (adapted to letter-sized …

READ MORE →
unnamed-5

Amber’s Cystic Fibrosis Miracle

Introduction My name is Amber Newman and I’m twenty-five years old, soon to be twenty-six. I was diagnosed with CF when I was seven months old due to failure to thrive. I’ve been a member at CysticFibrosis.com since I was twelve years old. I’ve been able to connect with an …

READ MORE →
LCI image small

Lung Clearance Index Improved in Children Ages 6-11 on Ivacaftor/Lumacaftor

Ivacaftor/Lumacaftor Improves Lung Clearance Index Score In Children A new phase 3 study, led by The Hospital for Sick Children at the University of Toronto, Canada, has been completed on the CF treatment ivacaftor/lumacaftor in children ages 6-11 with two F508-del CFTR mutations. In a group of 206 children from …

READ MORE →
graphic by By Lbudd14 (Own work) [CC BY-SA 3.0 (http://creativecommons.org/licenses/by-sa/3.0)], via Wikimedia Commons

Outcomes and Tolerances in Cystic Fibrosis Treatment Lumacaftor/Ivacaftor

Last month, the results of a study were published that looked at the progress and side effects of the cystic fibrosis treatment lumacaftor/ivacaftor in 116 people with CF during a year after starting the medication. 46 (39.7%) people reported side effects related to lumacaftor/ivacaftor, and of the side effects, 82.2% …

READ MORE →
Cfdiet

Cystic Fibrosis diet: Recipe Contest! Win one of 4 x $50 Gift Cards

The Cystic Fibrosis Diet Recipe Contest is open again! Enter a recipe that forms part of your Cystic Fibrosis Diet by 31 May 2017, to stand a chance to receive one of 4 $50.00 Amazon gift cards. Your recipe can include ANY of the following category ideas: Recipes for weight gain …

READ MORE →
Pup fell asleep with the Vest

New on Cystic Fibrosis Social Media (@knowCF)

What’s new on the Cystic Fibrosis social media pages (@KnowCF)? We are active on social media – want to know the latest news? Please follow the links to see what is new on our Cystic Fibrosis Social Media channels. Post your own comment – or just see what others are …

READ MORE →
The yogurt and kefir milk in the picture are lowfat but other brands do carry whole or full-fat versions.

Full-Fat Fermented Dairy May Cause Less Inflammation Than Regular Dairy

In the cystic fibrosis diet, dairy products are often used to reach high-calorie targets, and new research has shown that it may be beneficial to focus on full-fat fermented dairy rather than regular dairy, because full-fat fermented dairy may cause less cardiovascular inflammation. A study published in the British Journal …

READ MORE →
T alpha 1

New drug (Thymosin alpha 1) discovery: potential for Cystic Fibrosis treatment

According to an article published on www.sciencedaily.com, researchers have discovered a potential new drug to treat and stop the progression of cystic fibrosis. While many other promising drugs are in the pipeline, we here at cysticfibrosis.com will be keeping a keen eye on further developments of this medication. Read the …

READ MORE →
Indrepta C

Indrepta C Lottery Winners

Planetary Biosciences is holding a Give Away Lottery on the cysticfibrosis.com group, for 7 people receiving one bottle of Indrepta C, to celebrate the release of this new product.  If you want to be part of this lottery, please send an email to [email protected] with the Subject: Indrepta Lottery.  Please read …

READ MORE →