social media feature pic jan 2017

New on Social Media

We are active on social media – want to know the latest? Please follow the links to view some of the most recent social media news.  Post your own comment – or just see what others are saying. January 2017 Facebook: Facebook.com/KnowCF Facebook Member Post: A member of our community asks “Anyone …

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Foam roller blog

Cystic Fibrosis treatment: Foam roller benefits – a member blog

I recently received some questions about foam rolling, as a result of a personal blog Top remedies or tools for CF related ailments, which listed foam rolling as one of my favourite CF remedies. Questions such as “What is a foam roller?” and “How does one use it?” – Here is a bit more …

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nu me

A Day with Portable Genomics

  Using the Portable Genomics App   CFtechnology and Portable Genomics are proud to create a partnership using a new, customizable app! In the Digital Age, it is no surprise that apps are finding their way into the medical field. Technology is everywhere, so why not harness the power of …

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DNA CRISPR

Radio Interview: CRISPR Gene Editing

“There has never been a more powerful biological tool or one with more potential to both improve the world and endanger it.” For an in-depth look at the progress being made and the potential of CRISPR, the gene editing tool, listen to this radio interview on National Public Radio. Cystic …

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PGCFT

Portable Genomics and CFTechnology.org Partnership

From PRNewswire Portable Genomics and CFTechnology.org have entered into a partnership to enable cystic fibrosis patients to better collect, manage and share important biometrics with caregivers, researchers and the pharmaceutical industry News provided by Portable Genomics Jan 17, 2017, 06:04 ET SAN DIEGO, Jan. 17, 2017 /PRNewswire/ — Portable Genomics …

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Miracle Flights: free medically-related air travel for ill patients, including for Cystic Fibrosis treatment

Struggling to cover the cost of air travel to receive your medical care? Miracle Flights assists patients through free commercial air travel to obtain special medical care. Read more about this fantastic organization and how to apply below…   Blog article written in conjunction with Brooke Freeman, Community Outreach Officer …

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burkholderia

CF Lung Microbiome: Diversity and Lung Function

The article, The Lung Microbiome and Airway Disease, published September 2016 in the Annals of the American Thoracic Society, describes various research studies that analyzed the relationship between the lung microbiome and airway disease. Scientists can now better examine microbial communities in the lungs, and they are looking at how …

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CFTR Function and Cigarette Smoke

Scientists are looking at how the CFTR (Cystic Fibrosis Transmembrane Conductance Regulator) potentiator, Ivacaftor, might be used in COPD, specifically chronic bronchitis. They found that cigarette smoking reduces CFTR activity in lung tissue, and that exposing the lung cells directly to a CFTR potentiator reverses this effect. While the vast …

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honey

Potential benefits of honey in Cystic Fibrosis Treatment

  Honey has been used for centuries as a food and sweetener but also for its healing properties. Early uses of honey has been noted in ancient civilisations, in countries such as Egypt, Greece, China and Spain. Honey continues to be a popular food today, and a natural product that is widely used for …

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(Cystic Fibrosis Diabetes) First FDA approved artificial pancreas and other 2016 Digital health highlights

The “What We Learnt in Digital Health in 2016” article (by Bertalan Meskó, MD, PhD) takes a look at the successes, failures and challenges in the field of digital health in 2016 and provides an interesting view on some current trends. The first FDA-approved artificial pancreas is mentioned (which may be of interest …

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