Suggestions to Help You Manage Cystic Fibrosis at College
Congratulations, you were accepted at the college of your choice and you’re getting ready for the next major transition in your life. This is a highly exciting time when you’ll be embarking on new adventures, meeting new people, and learning a lot about the world and yourself. But it’s normal …
Technology’s Place in the Lives of Patients with Cystic Fibrosis
Copyright © 2019 NetNoggin, LLC. All Rights Reserved. Technology’s Place in the Lives of Patients with Cystic Fibrosis Newcomer M1, Conger D1, Rudnick C1, Noland D1 Authors Information: 1. NetNoggin, LLC, Frederick, MD USA email: info@netnoggin.netTechnology and Cystic Fibrosis Big data is telling us that despite cystic fibrosis (CF) being …
Gratitude: came in my inmail!
We all can reach back in our memories and think of something or someone who made a difference and just quietly “give thanks”. Blake (Lance2020) actually took the time many years later to thank us at CFTechnology.org for the gift of a flip camera, this was a digital camera before …
Going Back to School with Cystic Fibrosis (from our Archives)
Monday, August 25, 2008 written by Lauren Beyenhoff based on a survey at Cysticfibrosis.com FreePics CF Goes Back to School Sharpened pencils, new backpacks and notebooks; ‘Tis the season for heading back to school. Sending a child off to school for the first time can be an emotionally charged event. …
Why Cystic Fibrosis and Blockchain? by LittleLab4CF
LittleLab4CF David Orthman, PhD How can BlockChain facilitate Pharmaceutical companies go-to-market strategy? The greatest barrier to doing business is inertia. The red tape will stop or stall any new commerce. BlockChain can offer the simplest path from product to payment and delivery. First and foremost, Pharmaceutical companies eschew re-inventing wheels. …
LittleLab4CF (our own Geneticist with Cystic Fibrosis) Helps us Understand Pharma/Patients and Blockchain
How can the data-sharing capabilities of BlockChain lead to lower development costs and increased efficiency? BlockChain can be compared to a suite of software utilities like Microsoft’s Office package. Office software and similar products have a word processor, spread sheet, product promotion and business presentation applications like PowerPoint that are …
Welcome to CFTechnology.org video
We have a new introductory video about CFTechnology.org. Thank you to the talented Blake (with CF) for the fantastic job on the creation of this animated video. If you like this video, please like and share, as we are still trying to attract the right funding and partners to make …
A New Model for Patient Engagement for Cystic Fibrosis Patients and Caregivers
Our blog appears in the DIA global forum. It has the results of our initial survey (which took place from 2017-2018) where 1200 of you responded, both patients and caregivers. CFTechnology.org, a non-profit, global online community of over 18,000 cystic fibrosis (CF) patients and caregivers, has launched a study to …
SSDI for people with Cystic Fibrosis
Does Cystic Fibrosis Qualify as a Disability for SSDI? Learn more about SSDI and Cystic Fibrosis. Article written by Danielle Roberts, a Medicare insurance expert. You can learn more about her and her team at https://boomerbenefits.com. *** About 30,000 people have cystic fibrosis in the U.S., according to the Cystic Fibrosis Foundation. As …
CURE-E-US: Our CF community has an UNMET NEED (Part 3)
The survey: “Discovery, Research, and Profit” has ended and I have presented at the World Orphan Drug Congress in Maryland. I presented the story of how the survey came to be, and our motivation for wanting to move forward with building an app as we have identified an unmet need. You …