Surviving Through the Pandemic Isolation in Ireland with CF
Saying Good-Bye to One Emotional Roller-coaster… January 2019. Fatigued, emotional, drained, fragile but eternally grateful, I was ready to take […]
How Breathwork Can Help Cystic Fibrosis
Deprived of a Beneficial Therapy? Although I’ve been in and out of hospitals since my diagnosis of Cystic Fibrosis at […]
Food, Glorious Food! – by Sarah Leigh Milczanowski
A LITTLE BIT ABOUT ME Hi all readers, I am Sarah. I’m 34 years old, I live in the UK […]
My Top Tips for Sleepless Nights with Cystic Fibrosis – by Aoife P. Rafter
I’m sure many of you are aware of the importance of sleep in order for the body to recover from […]
Introducing Alison Smith – founder of Cystic Fibrosis Mummies
My name is Alison. I am 38, I am married to Adam and we live in Northamptonshire, Uk, in a house […]
Different with Cystic Fibrosis: The struggle of feeling ‘different’ from your peers at school and how to overcome this – Cerys Upstone
Everyone wants to blend in to an extent and be accepted. We all follow the status quo, and whilst we […]
Aoife P. Rafter – My Battles with Cystic Fibrosis & Cervical Cancer
The Trip of a Lifetime The trip of a lifetime was quickly approaching. I was feeling fitter and healthier than […]
Roche Virtual Summit Lauren Brenneman speaks Innovation and the CF community
Lauren Brenneman of CFTEchnology speaks about the mission of patients to take charge of their data at the Roche Virtual Summit Patient Panel
Anxiety in CF: Can CBD oil help?
Most CF patients experience anxiety about their health. Anxiety and depression may be increased by ingestion of many common CF […]
CFTechnology and CreativeDestructionLab
Discovery, Research, and the Economics of Human Data OUR REQUEST: As supporters of our community, we are reaching out to […]