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Living With CFResearchRespiratory DiseaseVideo

Webinar: Infection Prevention During Bronchoscopy

Laurence Muscarella Ph.D. and Atul Mehta M.D. A detailed webinar (71:30 minutes) can be viewed online. Highlights: The latest research into bronchoscope cross-contamination issues. Most frequent causes of infection risks Most importantly:  what everyone who uses bronchoscope should know to prevent risks Click to view the Webinar    

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globalgenes
GeneticsLiving With CFNews & EventsVideo

Rare Disease Patient Advocacy Summit

Later this week, Jeanne Barnett will be attending the fifth annual RARE Patient Advocacy Summit run by Global Genes in Huntington Beach, California. The goal of this year’s RARE Patient Advocacy Summit is for patients, caregivers, and advocates to walk away equipped with actionable next steps whether you have been …

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Character
Living With CFResearchVideo

The Science of Character

The Science of Character (8 mins) explores the neuroscience and social science that proves that we can shape who we are, and who we want to be. Learn More…

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Cystic Sisters
Living With CFParentingTransplantsVideo

Documentary: Sisters living with Cystic Fibrosis

Olivia Shivas from Attitude Pictures in New Zealand wrote to cysticfibrosis.com about a documentary series her organization has created that explores the lives of people living with serious health conditions and disabilities. One of their documentaries is about two sisters, Kristie and Nikki, who are young moms with cystic fibrosis. …

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Book Reviewsfeatured_memberLiving With CFVideo

It’s Been a Good Life Dad: My Son’s Struggle with Cystic Fibrosis

It’s Been a Good Life Dad: My Son’s Struggle with Cystic Fibrosis by Jerry E. Hendon Author Jerry Hendon writes: I have written a book about my son, Kevin, who died of cystic fibrosis in 1986 at age 18. The book, It’s Been a Good Life, Dad: My Son’s Struggle …

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bubby's enzymes
Gastrointestinal DiseaseLiving With CFParentingTreatmentsVideo

Toddler Bubby, taking enzymes for Cystic Fibrosis treatment

80%-90% of people with Cystic Fibrosis need to take enzyme capsules before they eat, as part of their Cystic Fibrosis treatment. In Cystic Fibrosis, as the lungs produce thick, sticky mucus, the pancreas also makes the same type of mucus that blocks the release of enzymes needed for digestion. When …

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GeneticsLiving With CFResearchVideo

Genome editing with CRISPR-Cas9

This video explains how research in genome editing may help treat genetic diseases like CF in the future.

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Exercisefeatured_memberLiving With CFVideo

Lauren Brenneman – Hartford Hospital cystic fibrosis case study

CysticFibrosis.com welcomes Lauren Brenneman (LouLou) to the CysticFibrosis.com team. Lauren will help to carve out strategic paths as we move forward and serve the CF community. She will also be involved on many video productions we have planned in 2015. This is Lauren’s latest video and as you can see she …

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