ExerciseLiving With CFResearchRespiratory Disease

Research on CF and Exercise

Significant research, both recent and decades old, shows that exercise helps people with CF. Yet it’s not always a part of a person’s treatment regimen. Here are some facts that may convince you to exercise more with the the guidance and approval of your CF team. “Exercise can provide improvements …

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Member post: goals, managing expectations and disappointment

A little story: When I was 12, I participated in a big folk dancing competition through my school. It consisted of several hundred participants and we danced non-stop for hours in front of a selection panel. An elite group of dancers would be chosen to go on a week-long vacation …

Living With CFNews & EventsResearch

North American Cystic Fibrosis Conference 2016

The 30th annual North American Cystic Fibrosis Conference was this October in Orlando, FL and offered more more than 60 sessions on topics related to CF. It was attended by physicians, research scientists, nurses, respiratory and physical therapists, social workers and pharmacists and more. The summary from the session called, …

ExerciseLiving With CF

13 year-old with CF a Top Surfer in South Carolina

A thirteen-year-old with CF, Bree Labiak, is a top surfer in South Carolina. She competes with and sometimes wins over surfers ten or more years older than her. Read more about her here http://www.postandcourier.com/20160905/160909853/13-year-old-with-cystic-fibrosis-is-one-of-the-top-female-surfers-in-sc From the article: Dr. Patrick Flume, director of the Medical University of South Carolina Cystic Fibrosis …

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ExerciseLiving With CFResearch

Three Pilates Exercises to Improve Breathing

People with Cystic Fibrosis often suffer from air trapping and hyperinflation of their lungs. Air trapping is an abnormal retention of air. It can occur because the lungs lose elasticity and air doesn’t escape, and because mucus and inflammation obstruct exhalation. The trapped air can then cause the lungs to …